[hyperm]

#1059624

Happy New Year.

I was wondering if anyone had experienced elevated creatinine (273) because of thyroxine, hypoparathyroidism or worse case scenario kidney failure?

My calcium levels are low, TSH 0.10, T4 22. Creatinine 273

I was taken aback on Christmas Eve when I was to attend my practice nurse for further blood tests and she hold me they were ? Kidney failure.

Is hypoparathyroidism common with GD. I am 4 years post surgery so it is very unlikely that my glands were damaged at surgery as my calcium was always within the norm.

I honestly feel, when I read how others recover or are controlled, why can that not happen to me. Can I be honest in saying the way I feel most days (this has been going on for 7 years now), I don’t feel I will make it to my 40th birthday – 8 years away. Is my body shutting down or are all the autoimmune conditions switching on now? What are my chances of recovery?

Is anyone else , 7 years down the line, post thyroid storm and TT still feeling very unwell?

Moderators do you know of any support groups for hypoparathyroidism?

Thanks

X

[catstuart7]

#1176247

Hyperm, so sorry to hear things are bad right now. I don’t know much about kidneys connected with Graves but I would guess it is rare though. Maybe another doctor’s opinion might be helpful about the kidney connection and how your replacement hormone is being managed. I’ve read that there are some people who do have a hard time with t4 only replacement and need t3 additionally to feel okay – have you ever explored that angle? Wishing you well.

[Bobbi]

#1176248

The active chemical in replacement hormone IS thyroxine, is chemically identical to the body’s own T4. I have never heard of kidney failure while taking it BECAUSE of it.

I have a lot of respect for nurses, but in a situation like this, I would like the doctor to see me. Immediately. To begin the process of trying to determine what in fact IS going on. There may be many different things to look at — including thyroid — but finding out what is happening quickly is important.

I don’t know of any support group for hypoparathyroidism, but perhaps Kimberly does.

[StacyA]

#1176249

Just giving you support and saying if you feel that unwell it’s a good idea to get a second opinion immediately. Don’t assume you’re in kidney failure ..see a specialist and try to get to the bottom of the bloodtest levels and unwell feelings now. There’s no reason you should feel you aren’t going to make 40. You need to get to the bottom of your issues. Hugs.

Oh…(link removed) may know of a group for parathyroids..maybe…

[snelsen]

#1176251

First I’d call the doc who ordered the labs to get accurate information This lab one measurement of many that can indicate little without medical guidance
I imagine the caller said or should have said kidney function not failure
Speak to the doc directly try not to worry a lot a out this in the meantime
You need more info from doc And do give more info to the doc.
Shirley

[Kimberly]

#1176250

Hello – I am not familiar with hypoparathyroidism occurring so long after surgery or with a connection to the kidneys.

One suggestion might be to connect with http://www.thyca.org/

This is an organization that provides credible medical information for patients with thyroid cancer. You might get more responses on that site, because while surgery is one of three options for treatment of Graves’, it is the front-line treatment for patients with thyroid cancer. You might see a wider range of responses there.

Take care!

[snelsen]

#1176252

There are routine tests for kidney FUNCTION. I don’t know, she may have said that, not failure. I’d take it easy, call the doc who ordered the tests, there are numerous reasons a creatinine could be elevated. You can/should ask if it is related to Graves’ (i don’t think so) and/or any meds you are taking. ATD’s are more noted for increased liver function labs than kidney.
Shirley

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