[bargdill]

#1059617

very long story. i have been sick for most of the last 15 years. my tsh is slightly low and free t’s normal so they have been saying that is not the cause of my syptoms. finally had uptake scan which showed cold nodules and 50 some % uptake over whole thyroid. started pku still feeling terrible 2.5 weeks later, i did have a miscarriage a few months ago which must have set this all off. exhausted, all day brain fog, freezing hands and feet, sick to my stomach, swollen eyes. wondering if the ptu isn’t working? i am on the lowest dose. i don’t even have any antibodies is this wierd? am i on the right track? my parathyroid hormone was high and vit d low too. been on d for over 2 months now.

[vanillasky]

#1176198

Unsure about your post. Did they come flat out and say you have Graves?

You should have antibodies. TSI is the Graves antibodies. Your cold hands and feet sound more like Hashimotos.

I was misdiagnosed for 15 years with Hashimotos and just found out they were wrong. I had Graves! Hashimotos/Hashitoxicosis is one thing they thought I had and gave me ATD’s which didn’t work at that point.

Karen

[Kimberly]

#1176199

Hello – Wow, I’m sorry to hear about your miscarriage. Antibody testing for Graves’ is generally *very* reliable, but like any test, it’s not 100%.

Do you have another doc in your area that could give you a second opinion? Feeling cold all the time is generally more associated with hypo rather than hyper. Also, are the cold nodules of a size where your doc feels a biopsy might be useful?

Normal T3/T4 along with suppressed TSH is generally referred to as “subclinical hyperthyroidism”. For patients who are having hypER symptoms or are considered “high risk” (over age 65, history of cardiac issues), the preference is to provide treatment. Common symptoms of hypERthyroidism include rapid heart rate, hand tremors, muscle weakness, insomnia, unexplained weight loss, excessive sweating, and frequent bowel movements.

For patients who aren’t symptomatic at all, the usual approach is to “watch and wait” – and continue monitoring to see if T3/T4 levels eventually start getting too high.

For patients who are overtly hyperthyroid and taking anti-thyroid drugs, the response time varies. Some patients can see a change in as little as 2.5 weeks, but for others, it can take much longer.

Take care – and please keep us posted!

[StacyA]

#1176200

Ive read PTU takes a minimum of 4 -6 weeks for most people to respond, I would definitely not panic at two weeks that it isnt working.

[Author]

Posts