Hi, i am glad you are seeing a neuro-opthalmologist. It is very good to have them on board at the beginning of TED.
You have good questions, and be sure to ask them when you see the doc.
In the meantime, you can think on my answers which I have learned form my own experience, my docs, and a bunch of reading.
1. Basically, the TSI kinda confirms what is already known. That you have TED. So it is a confirming diagnosis. But it won’t be used to determine the duration of your active phase. Another way of saying this, is that as long as you are having changes in your eyes and your vision, you are in the active phase, regardless of the numbers. They can be going down, and you can still be in the active phase. So, the numbers going down, is good, but it doesn’t mean much in your day to day life.
With TEd, a lot of the treatment in the active phase is trying to help with the dry eyes, the sensitivity to light, basically helping the symptoms. And of course the neuro/op doc will watch your vision with visual fields tests and some other color tests.
2. Eye exercises-I don’t think they would help. But check that out with your doc. All my eye muscles were swollen and fibrosed, and it hurt to even LOOK, let alone strain them by exercises. But there may be some merit to them that I don’t know about.
As you can see from the end of my post, I have “been there, done it all!”
Best to you,
Shirley
