[jrs1218]

#1058829

I was diagnosed with GD in June of 2011. I am currently on a LID. I am waiting for another uptake and scan. I feel great!! I am not choking anymore! Has anyone else had this happen?

I did accidentally eat food with iodine last night and ended up with the choking feelings again for about 2 hours. I still feel a little strange today. (But it’s Monday, so who knows.

I haven’t felt this good since before I went hyper! I was thinking of just treating the GD with this diet, but my heart still races/pounds every night and I get out of breath walking up the stairs, so I’m not fixed yet, but I do feel way better.

[Kimberly]

#1170275

Hello – I’ve not heard of the LID being used as an alternative treatment for Graves’. Keep in mind that the LID is a “low iodine diet” rather than a “no iodine diet”, as it’s pretty much impossible to remove all sources of iodine from the diet. I followed this diet for two weeks prior to my diagnosis in 2007, and I personally didn’t notice a difference.

However, a presenter at our Boston conference noted that patients who go through a course of Anti-Thyroid Drug therapy tend to have better remission rates if they follow a diet low in iodine content once the meds are discontinued.

Take care!

[jrs1218]

#1170276

I can’t explain it. I’ve been on Methimazole and propranolol since June. I went Hypo and they wiened me off the meds slowly. I was finally “normal” on 2.5mg every other day, but I had a pounding in my ears. My dr. said that my thyroid was swelling and blocking my vein, so the blood wasn’t coming out of my head very well. He also told me to have the RAI done ASAP.

For the last two weeks I have been on the LID. (waiting for my uptake and scan) I am on almost no iodine. No dairy, canned food, no iodized salt or processed foods. I really feel pretty darn wonderful. I almost wondering if I wasn’t misdiagnosed. Like maybe I have an iodine allergy or something instead of Graves. Obviously I will pass that thought by my endo. I am sure I am wrong.

My thyroid is still swollen though and I started feeling like I was choking when I acidentally ate the spinach which has iodine in it. That and the pounding in my ears are the doses of reality I have. I feel pretty darn good.

[jrs1218]

#1170277

It was a fluke. I thought I was better without the iodine, but really it was just the methimazole leaving my body. I must have needed a lower dose, but now I am stuck. I can’t take the meds because I am having another uptake and scan and getting the rai done, and the symptoms of Graves are starting to come back. I have extreme muscle weakness and feel soooo tired. My heart is pounding when I exert myself in the slightest. At least I’ve been through this before so I know what to expect.

[Bobbi]

#1170278

I hope you are on the mend, and permanently, soon. I’m sorry you are feeling so crumby right now, though.

[jrs1218]

#1170279

It’s kindof funny. I had so many ups and downs, but on the LID diet, I felt good most of the time. I think I must have eaten too much iodine on the bad days. It has a tendancy to sneak into your diet in everything.

I am on day one of thyroid therapy. I took the pill at 3pm. It’s 12:15am, just a few short hours later, but besides my neck being warm and my back hurting (from having to pee), I feel pretty good. I’ve never peed so much in my life. It’s about every half hour. It’s a good thing though, I don’t want to radiate my bladder.

Thanks for your kind words Bobbi. I appreciate them. I am hoping that the pounding heart will go away, but the radiation doctor said that with Graves you can fix part of the heart problems, but not all of them. That’s a pretty hopeless comment. I haven’t lost that much hope yet.

I misunderstood what Kimberly said earlier on in this conversation. I don’t think I was going into remission while being off the iodine, but I think it helped a lot. My dose of Methimazole was so low I was practically taking nothing and my labs were really good.

I was off the Methimazole for 6 weekds before the RAI and only had a couple bad feeling days.

Thanks everyone! This has been a real help. Even if it’s just getting my feelings down. It has helped.
Jenn

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