Hi, vrider, and welcome to our board. I’m sorry you are feeling so terrible.
The problem, from my point of view, isn’t that your doctor seems to be going only by the numbers. It’s that the doctor appears to have stopped thinking about what is causing your symptoms. You don’t mention that your doctor has looked for anything else. Perhaps he/she has and you didn’t mention it. It is, unfortunately, possible for those of us with Graves to turn up with another disease, later on in life. And the symptoms of a lot of diseases are shared. It’s one of the reasons many of us — me, as well as you — endured Graves a lot longer than necessary before the diagnosis. Those of us with Graves see those symptoms as "GRAVES!!," but sometimes it is indeed something else. So, what we need in a doctor is not someone who simply says, "It’s not your thyroid." The doctor can say that, but then needs to say, "But let’s see what it might be." And if the doctor doesn’t say that extra bit, WE need to say it to them to get their thinking jump-started. Anyway, I hope your new doctor is more help to you to figure out what IS going on. And, fingers crossed here that it is simply a function of taking slightly too much replacement hormone. Some of us (hand raised here again) have "some" thyroid tissue left after RAI. It’s not enough all by itself to make us hyper again, but with the addition of the replacement hormone, occasional dose changes need to be made.
Anyway, I hope you get your problem fixed and are feeling well again, soon.
