[odapoda]

#1058776

Hello again!
Hope you all are doing well ” title=”Smile” />
..or atleast doing alright

Obviously, I’ve been one of those "feeling good, gone from the forum" people now.
So, short recap since the last post;
I finally got through to my tiny team of doctors, that I could not keep doing what I was, being unmedicated and still so, so sick even in remission. After the long wait of being approved by two boards of doctors, I finally got my surgery! At this point I was severly underweight and sleeping most of the day.
So late august I got my thyroid removed. And I am so happy I did! Already feeling so much better, the doctors are amazed by how fast I’ve been healing etc. Sure, the scar isnt the prettiest thing, atleast not right now. But it beats feeling like crap all the time ” title=”Wink” />
Surgery went without a hitch, even though they discovered after opening me up, that my thyroid had a growth going up my throat, bugging my tongue. Yikes!

Again, I want to say thank you to everyone here, I would never have made it through all of this without being able to come here, to either vent or read.

I’ll still be lurking around, as I have for the last two years.

All the best to you! ” title=”Smile” /> good luck on your journey, no matter where you are in it. And I hope you too will feel better, soon.

Of course, if anyone wants to ask me anything about the surgery, questions are always welcome.

– Oda

[Kimberly]

#1169903

Thanks for checking in with the positive report — wishing you all the best!

[Bobbi]

#1169904

We love hearing good news like this. And it’s really a help (as you know) to the folks who are still feeling awful. Thanks for posting.

[RebeccaJT]

#1169905

Hi Oda

Thanks for your post and great news you are feeling good. My story is so similar!! I am scheduled for urgent surgery after nearly two years on ATDs (and feeling awful) and a short spell in so called remission (feeling worse). I now have a good surgeon who says that it’s the INFLAMMATION in the gland not just the hormone levels that make us feel terrible, as evidenced by us feeling wretched when hypo and ‘normal’ which is sounds like you also experienced. I have a thread going re surgery called ‘what to ask surgeon re thyroidectomy’ if you get time to have a look.

I’m very worried about it all – and they are currently checking all my vitamins as it looks like those are all over the place too – not least how I’m going to get through to the operation when I’m falling to bits right now! It turns out I’ve been misdiagnosed and seriously hyper for at least ten years, and ill with Graves since I was a teenager, so I’m really glad you got treated early.

Anyway, I just looked up all your other posts, and I identify a lot with your story (except I’ve got fat and you were thin!!) and it gives me a lot of hope to see that you are finally feeling better. I suspect that something funny is also going on in my throat – I can feel it pulsing, it feels like my heart is in my neck! It wouldn’t surprise me in the least if my goiter isn’t growing into my neck cavity too, I’ve heard that story a lot.

Anyway, I’m glad it’s not just me who is fighting to get heard about the devastating symptoms of this illness. My surgeon said that most doctors leave med school knowing virtually NOTHING of value about the thyroid. I agree with him, my medical notes are a litany of (often well intentioned) incompetence! As you can tell, I’m still a bit angry about that!

Anyway, good to hear your story.

Best wishes

RebeccaJT

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