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Hi old and new friends how are you all?
Looking for some advice and I know this is the place to come. Yep GD is still rolling my life! Only normal TFT in 6 years and I was 2 weeks post partum and slashed my thyroxine. Endo is baffled as to what to do and when he showed me the computer screen with my results over the years all but the result in December 2010 (post partum) where highlighted in red!
Ok so I cannot shift the3stone in weight even though I was once again excessively hyper. Feeling exhausted, sweating, shakes and the dreaded Graves rage ” title=”Sad” />
I need advice asto the possibility of other treatments rather than thyroxine. I honestly feel maybe this doesn’t agree with me a have felt that in the prior to the thyroidectomy. In the UK we don’t get to choose meds weare consultant lead but I feel confident enough to approach my endo regarding this.
Had my bloods done again today and know without a doubt I will get a phone all from my GP -as there will be a red flag on the results.
Any suggestions as to meds or other advice?
M x
Thank
P.s also recently been diagnosed with Gilbert’s Syndrome which is apparently very common in thyroid patients? X
Hello and welcome back! I’m sorry to hear that you’ve been struggling. We are just fellow patients here, not doctors, but here are a few thoughts to discuss with your own doctor…
Some patients have found that they feel better by adding some T3 to their regimen. This doesn’t work for everyone…some patients have found that it actually caused a recurrence of their hypER symptoms. Also, there is a drug called Tirosint that is the same active ingredient as Synthroid, but it comes in liquid form. The *theory* is that absorption should be more consistent with a liquid tab. However, this is so new that I haven’t spoken to any patients who have tried this…and our medical team hasn’t weighed in on this product. As I recall, you are in Scotland, so I’m not sure what the availability would be there.
Also, make sure that you are following the time restrictions regarding food and supplements to ensure maximum absorption. The general rule is to take the pills first thing in the a.m. and then wait 30 minutes (60 minutes is better) to have breakfast. Also, certain supplements such as calcium/iron should be taken 4 hours apart from Synthroid, to make sure the supplements don’t interfere with absorption.
Finally, a study came out a while ago suggesting that some patients might do better by taking their replacement hormone at night, rather than in the morning. The idea is that because metabolism slows down at night, more of the drug is actually absorbed into the system.
Wishing you all the best!
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