[ashleyp]

#1058659

Hello. My name is Ashley and I’m 25. I was diagnosed 6 years ago this month while I was in college. Basically the only treatment I got for the remainder of my school year was taking beta blockers (16 a day, at that). In may of 2006, I had RAI and within 2 weeks my levels were so low I was miserable. Since then, it’s been a constant fight. My family doctor and his nurse practitioner fight on how to treat me. My original endo was impossible and wouldn’t listen to me and my second one felt that I was too young and he wasnt comfortable treating me. So now, 6 years after the original diagnosis, i’m on 300 mcg of synthroid, having panic attacks and being constantly anxious, sore all the time, tired, and gaining weight. I’ve been kicked off my parents’ insurance so I can’t afford to go to an endocrinologist. I work 3 jobs and I can not afford to feel this way, especially with being young.

I guess I’m just looking for support and a place to vent… lol

[gatorgirly]

#1169215

Hi Ashley,

I’m in a somewhat similar situation. I just sent you a private message because I really have nothing insightful to say that could help you or anyone else… other than, "I get it." ” title=”Smile” />

[Ski]

#1169216

Hi Ashley,

At this point in your treatment, you could be successfully treated by a general practitioner you trust, which would be less expensive for you, I believe. It is important to have the right levels of thyroid hormone, otherwise you’re not going to feel well, which means you need to have access to blood tests and a doctor to consult with. It is less expensive to get a lab test and a phone consult with a doctor, and you should be able to hone in on your best replacement hormone dose in that way, as long as you keep taking the replacement hormone regularly pursuant to whatever advice the doctor gives you. It takes time, no question, but getting CLOSER to your best level will always be better than being chronically out of balance, and closer all the time means that eventually you are THERE, and feeling well. It takes a little while being normal before your body really, truly heals, but every step into the right direction will provide relief.

Taking too much replacement hormone will be as damaging to you as taking too little, so it’s critical that you figure out a way to get some care. You may be able to check with a former physician, or go to an emergency room at least to find out where your levels are right now — you may be able to get a doctor’s advice on ongoing care, but at least you would get some information and start moving in the right direction.

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