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  • Ckfred62
    Participant
    September 28, 2011 at 5:56 am
    Post count: 2
    #1058647

    What do you suggest are the "right questions" to ask when choosing a center for orbital radiation therapy. My Hopkins surgeon said that it is not necessary to drive the distance to Hopkins for these daily procedures and the choice is mine. Has anyone ever had a BAD experience with orbital radiation for TED?

    Kimberly
    Keymaster
    September 28, 2011 at 2:08 pm
    Post count: 4294
    #1169170

    Hello – I haven’t been through this process, but if you scroll down a few posts, there are some good comments on radiation therapy in a post called "radiation treatment to eyes".

    A few major questions off the top of my head would be whether you need someone with you to drive, whether they plan to deliver the treatments in conjunction with steroid therapy, and what kind of success rates they’ve had with other patients.

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