[Anonymous]

#1165749

Hi Steve,

I doubt whether the hiatal hernia is related to the RAI. I’ve had
a hiatal hernia for years and control it with the same medication
that people take for ulcers. If I don’t take it or reallly abuse
my stomach, it hurts and feels like pain in the heart. I only know
of one person who actually had surgery to correct the hernia – most
just take a pill a day. Guess you get to add another pill to your
routine!!!

Good luck!
DonnaN

[Anonymous]

#1165750

HELLO ,DONNA

HOW ARE YOU ,THANKS I PANIC FOR NOTHING. I AM REALLY FEELING
BETTER RAI IS WORKING, DOING GOOD THESE DAYS. HOW ARE YOU
AND THANK YOU,

STEVE

[Anonymous]

#1057325

message 2 , well my doctor just called and the reason i still have pains in my heart is
not graves anymore ,he says i have developed a HIATAL HERNIA,DID
THE RAI DO THIS TO ME I WONDER,SO BACK TO A NEW PROBLEM
NOT WITH GRAVES, SO IF YOUR HEART IS STILL IN PAIN GOING AFTER RAI
YOU GO AND GET AN UPPER GI DONE, AND THEY WILL SAY HEY YOU
GOT SOMETHING ELSE BESIDES GRAVES, AINT THAT SWEET.
HAD TO GET THIS OFF MY HEAD.

STEVE

[Anonymous]

#1165751

Hi Steve. I read your message about being diagnosed with a hiatal
hernia. I can assure you it is not related to GD. It is a weakness in
the muscle bands which keep your stomach down in your abdominal cavity.
It is allowing the lower esophagus and stomach to bulge upward into the
chest cavity, which means the stomach acid can cause some wicked heartburn.
I believe only the worst ones are treated with surgery. Mostly medi-
cation and diet control work. Sorry you have to deal with this too!
Good luck!

Barb

[Anonymous]

#1165752

Hi Steve. I read your message about having a hiatal hernia. I can
assure you it is not related to Grave’s. It is a weakening in the
muscles that keep your lower esophagus and stomach down in the abdominal
cavity where they belong. They are able to pouch upward into the chest
cavity due to the muscle weakness (hernia) and the stomach acid can
cause wicked heartburn. The bad ones are corrected with surgery, but
mostly I think patients are controlled with diet and medication. Sorry
you have to deal with this on top of the GD! Good luck! Barb

[Anonymous]

#1165753

Hi Steve,

I’m going up and down. I was feeling a whole lot better until last week
when I reacted to the PTU and beta blockers. Felt like I’d been a few
rounds with a heavyweight contender. They cut the PTU to 1 every other
day but don’t know if that will hold me. My labs are beginning to get
too low so that probably doesn’t help either. I’m gettin’ sick of
this whole routine! I suppose I may have to give in and do the RAI
because I have to always take the beta blockers anyway and may not
be able to keep up on the PTU.

I’m so glad you are feeling better – you had us all worried for a
while! Are you able to get out and lead a somewhat normal life now?

DonnaN

[Anonymous]

#1165754

donna, you can not belive the change in me ,yes i still have some concerns but the rai is working
im only on 25mg a day of betablockers ive cut down. in 2 weeks i will be off the beta blockers
and than slowly getting off the lorazepam. i never went hypo after the rai
so i guess you could say im one of the chosen ones. maybe i go hypo in 6 months who nows,
but if you could see me this young stud, hes coming back to the world and watch out i have many plans for 97
i told myself when this is all over im going to make alot of changes to
my life already cut out drinking,its been 8 months ,i dont need that in my life and on my way of quiting
smoking very soon, i am in full control, some pains in chest but thats only gas.i do think its time for you for
rai its an easy step,and you will be happy after, like i said my endo was againt me going for rai,
well

---

him. Donna stay intouch email me,you all have been so special to me could never forget
the help ive received from the bb. I will try to give others the support back
you bet sweetie take care, keep me posted. 1997 and this warrior has done his mission.

love ,steve

[Anonymous]

#1165755

How much radiation did you have the first time, do you know? I had the legal dose that anyone could have (31) and be out of the hospital . They can give you a much stronger dose if you are in isolation is the hospital. I can’t remember how they measure the doseage. I went 15wks before I went hypo and I thoought I was going to go crazy, with all the different sytoms I was having. I kept asking my dr. can I do it again, maybe it didn’t take. He’d just smile at me and told me he knew it took and to be patient. I look back now, and think he probable thought I was totally crazy. I am sorry I haven’t answered your question but each of us are different in how our bodies respond. Your dr, is probably the only one to let you know if you can have another dose or not.
Hang in there, I’ll be praying for you.
Margaret

[Anonymous]

#1165756

When I had RAI done back 1n 1996 I took it as a pill. Hope that helps!

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