[Anonymous]

#1127709

Hello HyperKel,
Well i don’t know if its normal but quite a few of have such experiences. In January i was at .5 TSH by March i was at 3.3 TSH. The reason i had it checked again is because i was feeling hyper. I feel best at 1 TSH. I was there for a very short while.
My doctor seems to think everything is okay as long as i’m in the normal range. I see her on Monday. I’m going to ask if someone can feel great in the normal range when that range is so wide spread. How do they know what is normal for me? I was never checked for a baseline TSH.
As to whether you should change doctors? Do you feel confident in your doctor? Does the doctor listen and try to work with you? If not i guess i’d look around. I’m thinking of changing doctors if i don’t get any good answers to my questions on Monday.
Oh yes i found out on my own why my TSH had moved from .5 to 3.3 in such a short time. I was taking antacids with aluminum hydroxide in them. They affect the absorption of synthroid.
Hope it helps to know you’re not alone.
Virginia In MN

[Anonymous]

#1127710

Is it normal for the TSH levels to flucuate so much? It depends on your individual circumstances, and how you are being treated. If you had RAI in the last year or so, for example, it’s quite possible that your TSH would gradually rise, as your thyroid function declines. Mine has done that very thing for nearly four years now. Especially the first two years, every few months my TSH rose quite a bit.

I suggest you find another doctor, unless your GP can convince you a TSH of 9.5 is normal in his lab. (It isn’t anywhere I’ve ever heard of.) If possible, find an endocrinologist who treats lots of thyroid patients.

My latest TSH test came back around 2. I had been feeling very well when it was 0.5, and less well when it was 0.9. With my TSH at 2, I have definite hypo symptoms, including fatigue, arm weakness, and hair loss. Everyone is a little different in this regard, but it’s important to find a doctor who will adjust the dose within the “normal range” to find where you feel best.

Hyper and hypo symptoms really can seem much the same for me, at times.

What’s an average dose of Synthroid? It’s not something you can compare to someone else. How much you need depends partly on how much you weigh, but also very much on how much of your thyroid is still functioning.

Dianne W
NGDF Asst. Online Facilitator

[Anonymous]

#1039445

My TSH levels are all over the place. In December 99 TSH was 11.5.
Convinced my doctor to increase the dosage to .125 from .100.
Was feeling pretty good after about ten weeks.Confirmed my bloodwork TSH 3.3. Started feeling on edge this week, went to the doctor. He felt everything was fine. The next day I was on edge, very nervous, shaking, wet hands, High BP etc. went to the local ER, just to be sure.
The doctor on duty requested bloodwork. TSH 9.5 ? Felt Hyper was Hypo, go figure!!!
The ER doctor felt my dose should be increased to .150 or .175.
Went to my doctor today and discussed the findings with him and the bloodwork. I mentioned the other doctors comments and he felt my dose is fine and other doctor is wrong.
Is it normal for TSH is fluctuate so much?
What is the average dose of Syn.?
Blood pressure today normal to high normal.128/88.
I need some answers, maybe a new G.P.
PLEASE HELP.

[Anonymous]

#1127711

This question may sound ridiculous for someone with hyper, but I don’t understand the levels and numbers. I have a book on hyper, but I just don’t understand the talk; TSH, T4, T3, and all the different numbers. Can someone suggest a book that will break all that down to a kindergarten level, or a “dummies” or “idiots” level. I just don’t understand and I’m tired of feeling stupid while having this condition.
Thanks.

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