[LynneB54]

#1074653

Hi Sarabear,

I’ve had fibrocystic "disease" for as long as I can remember. I was told that it is basically a ‘wastebasket’ diagnosis and simply means that I have lumpy breasts. No one seems concerned about it. From my limited knowledge, I’d have to say that the thyroid problems and fibrocystic breasts aren’t connected, but I’m not a doctor.

Hope you get some answers from the endo that will help!

Lynne

[sarabear0508]

#1074654

Thanks Lynn!

Did you have pain? Or just lumps?
My friends a nurse and she said that your lymph nodes are part of the endocrine system and my have gone wacky with everything else! When I don’t have pain…it’s nothing….just lumps…like you said. I was told to take evening prim rose oil, because it’s proven to help.

Thanks

[sarabear0508]

#1019866

I mentioned in one of my posts I was getting a new doctor. Well, I saw her today and she great. BUT today has been horrible. First we talked thyroid…she palpated it and said that it was swollen. When she did that it was really painful! What does that mean?

Then she said my heart rate was one hundred. I’m taking PTU and 20mg of a beta-blocker.

THEN ( MEN CLOSE YOU’RE EYES!) she did and full physical exam and pap. Last year I found that I had many lumps in my breast and had a lot of pain. I was referred by my pc to see a breast surgeon. The surgeon said I had Fibrcoystic Breast Disease and there’s not much you can do. It’s not cancer, but little malleable marble like cyst. My lymph nodes are swollen too, its like that whole area from the side of your breast to your arm pit. The pain hasn’t been a problem since this time last year when I was diagnosed. I thought it has gone away…till now!

This is what the internet said, " The most significant contributing factor to fibrocystic breast condition is a woman’s normal hormonal variation during her monthly cycle. Many hormonal changes occur as a woman’s body prepares each month for a possible pregnancy. The most important of these hormones are estrogen and progesterone. These two hormones directly affect the breast tissues by causing cells to grow and multiply.
Many hormones aside from estrogen and progesterone also play an important role in causing fibrocystic breasts! – SO it’s hormonal.

I haven’t had a period in 2 months ( I’m only 20 yrs old) and had two of them in November, it’s reaking havoc on my reproductive system and my whole bod and now my mind!

So she reffed me to an endo and I am waiting for a call back so I can set an appt. Anyone have fibrocystic breast and a swollen thyroid? Could it be linked together?

I fell like my list of problems never ends! I feel that my family is sick of my complaints and it makes me feel bad.

Today has just been depressing.

Ps: I’m sorry this is so personal, but woman I need your advice!- this part of being female sucks!

[Madame_X]

#1074655

I have it also. I have had it for years and I had a couple of biopsies on the lumps about 7 years ago.

THey were filled with fluid, were the lumps. Nothing abnormal turned up.

[cathycnm]

#1074656

Sara – As a nurse-midwife and women’s health practitioner, I learned to be an advocate of calling this fibrocystic breast changes. It is not a disease as such. It is hormonal, for sure. It can also be agravated by caffeine.

Is it directly related to thyroid – not directly. But may be a first cousin. Because having a whacked out thyroid often leads to irregular cycles. That means your levels of estrogen and progesterone are not doing the nicely syncronized dance they usually do each month. So – your estrogen may be higher for longer peroids of time than normal – triggering this.

I don’t know how you feel about birth control pills – but you might ask your endo about this. It would get your cycle back into a regular pattern. It was the most common thing we did for fibrocystic changes when I was practicing – though I never treated this at the same time as Graves – so your endo would know more.

Other than that – eliminating caffeine, eating more green leafy veggies and some sort of regular exercise (again, check with your endo on that) were the old stand-bys a couple years ago. Good luck – let us know. I am curious. Cathy

[sarabear0508]

#1074657

Thanks Cathy!

I can’t take birth control pills. I tried 4 different types, each made feel horrible. I was vomiting, dizzy and couldn’t drive, moody and felt like turning myself inside out! So that options out. I prefer calling it what you said…"disorder!" Sounds a lot less scary. I’m waiting eagerly to hear from the endo. I changed doctors and they call the endo and the endo calls you to schedule an appt. I’ve never heard of that until now. So I’m caring the phone around with me!! I will let you know what happens. Thanks for writing back.

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