[cathycnm]

#1074640

Gemsile – Good for you! If you are willing to share what you make, I would love a copy for my nursing program. We have to enlighten others. Thanks for doing this – it will benefit all of us! ” title=”Very Happy” />

[gemsile]

#1074641

will do! hopefully I get some stories though!

[cathycnm]

#1074642

Have you thought about asking area endos if you could post something about this in your office. Go where the patients are!!! Especially if you have someone who has a large adolescent practice. I think this board is a great place to look, also. Cathy

[Trisha]

#1074643

My daughter is 11 and was diagnosed in November. If you want to send me some questions I am sure she would answer them. It might help her to know there are other young people with Graves. I have it, and so does my Mom, but we were diagnosed much later. It is just not the same. I think your film is a GREAT idea. The worst part for her has been activity restriction while she waits for her numbers to come down. She plays sports and she misses them terribly.

[gemsile]

#1019865

Hello all,

My name is Jessica. I’m 19 and was diagnosed with Graves’ at age 15. I was lucky, the meds worked quickly, but it still effects me everyday. Having Graves’ has greatly effected my life, and as a film student, I’ve always wanted to do a film on experiences with graves’. This semester, I’m finally going to get the chance! But I can’t just use my story, I need yours too!

If anyone is interested in sharing their experiences, I am looking for people who a) are adolescents with Graves’ (age 12-25ish?) or b) people who were first diagnosed as teenagers. I don’t mean to exclude people, but I feel there is not much out there on this from the "teen-age" view. We can do it through email correspondence or phone, or even web-cam!

Thanks in advanced! Everyone is in my prayers. And a happy new year to you all.

[gravessufferer]

#1074644

Hi there , my name is abigail, im 19 years old and got diagnosed in october 2008, i live in the uk and there is hardly any information at all about graves.

I am an art and creative writing student and was thinking about writing something about the whole experience anyway or doing some kind of art piece, i have already written a poem about the experience before being diagnosed.

I would be really interested in getting involved in this if you would like, and it would be good to talk to some people my age who are experiencing the same thing as me. Thanks

[Madame_X]

#1074645

Gee, this is great! What a fabulous idea!

I will bet you you can market that film to endo offices and hopsitals — as you’ve stated, there’s nothing from a young person’s POV.

Good luck!

[sarabear0508]

#1074646

Hi Jessica,

I know you will find my story very interesting. I just turned 20 in November. There is So much to tell you, instead of trying to type it all..go to the board index and look for messages by sarabear0508..that’s me…there you will find parts of my life. I will also send you a private message with an e-mail more about me! I think this younger generation needs to stick together and encourage each other. Thanks for stepping up.

[gemsile]

#1074647

Thank you for the responses I’ve already gotten! If you haven’t checked, I sent you all private messages, and will try to be in contact with you with some more concrete "questions" and whatnot ASAP!

However I’m still looking for more stories! I’d love to have as many "experiences" as possible to work with.

Please, if you’re not comfortable answering questions, I can get by wonderfully with just a personal, written (as short as you want) account of your overall/a particular experience with Graves. I’d rather have too many stories, than not enough to fill a short film ” title=”Sad” />

If you respond here with interest, expect a private message as a response!

Thanks, and best wishes to you all!!!

[hannahrose123]

#1074648

I was diagnosed with Graves Disease when i was 10 i was allergic to both medications they put me on so I had to get RAI done. A couple years after that my life started to go to hell due to all the symptoms of being hypothyroid. I am 18 years old now and have yet to feel 100% and yet to find a good doctor who will work with me.

[npatterson]

#1074649

We have a person who coordinates the childfren contacts. If you will get in touch with me, I will put you in touch with her. She may be able to forward your questionnaire (or how ever you are doing this) to them. nancyngdf@bellsouth.net.
This is a WONDERFUL idea, and one that has not been attempted as far as I know. If there is any way I can help, please let me know. Would love to be kept in the loop.

[npatterson]

#1074650

I thought I would pull this forward. How are your collected stories coming along? I know we would certainly love to have a copy at the office (New York, and NOrth Carolina)..My e-mail is "nancyngdf@bellsouth.net". If you have it even partially done, let me know, and we will try to get the adolescents who come to the conference to contact you.

Take care,

[gemsile]

#1074651

Dear all,

Thank you for all your help on this project. It is still going on, though I am currently taking a break from it as I am studying abroad this semester. I hope to get back to work on it in the coming winter.

However, please feel free to still contact me with any interest/questions/ideas you may have. I’d love to hear from you!

Peace and health,

Jessica

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