[DianneW]

#1073938

Kathy, ask your ophthalmologist if your high TSH may have had something to do with your eyes acting up again. Being hypo is a risk factor for worsening of eye disease. It was a good thing you get checked more often than once a year! I’m surprised too that your endo would think letting it go to yearly was okay. (Well, maybe not SO surprised, but disappointed.)

Mu endo used to check the Free T3 and Free T4 in the early years following my RAI when I was still changing often, but now 13 years out he usually just checks the TSH.

[KathyG]

#1073939

I am going to bring it up to him again……..my numbers were out, and I go every three months like I said, so not sure when it happened but my eyes had gotten worse at the same time. Since I have a liver function test done every three months with my PC, I have them do the TSH the same time and its sent to my endo also. I have never spent alot of time with him, as if my reports look good and my synthroid is where it needs to be I am good to go. Not my opthamologist though, of course I see him way too much! I am going to talk to him about my levels and will have the new set to show him when I go in to see him. I am going to ask him about seeing a optha that specializes in TED as I think he is good, but like I said, I feel as if he has come to a place where he is not sure what to do with me next, thus the surgeon. I would probably have to go to KU med center in Kansas City, and will if that is all there is around. I may have told you that I was sent to one before, and seemed to be a waste of time. Where would I look to find an optha that specializes in TED? You have had how many surgeries? Now its been 13 years, how are you with your eyes? Mine has been since 2005 and seems like forever. My son is getting married in August, I can’t imagine the look in those pictures……yuck. ” title=”Neutral” />

[KathyG]

#1019769

I went in today and had not only my TSH done but free T3, freeT4, TSI and TRab done. It will be interesting to see what results I get from this, as they only check my TSH every three months and nothing else. My endo and PC think I can do it yearly which surprises me some considering how fast things can change.
I had been on the same dosage of synthroid for sometime and my TSH in October was 9.171, at that time they increased dosage to .112mcg and last TSH was
0.388. I am curious as to what others do, and do you just get your TSH or others done at the same time? Thank you. kathyg

[KathyG]

#1073940

I don’t know if I am repeating this or not…….thought I opened a new topic by mistake, oh well here goes:

My lab tests are in:

TSH 0.628 range 0.300-4.000

Free T4 1.56 range 0.80 – 1.70

Total T3 129 range 60-181

TSI 492 !! range 0-129

TRab 4.2 range 0.0- 1.0 Borderline 1.0 – 1.5, Positive >1.5

NOW I NEED HELP WITH THESE PLEASE, AM WAITING FOR MY ENDO TO CALL TOO!

THANK YOU
KATHYG

[Ski]

#1073941

Hi Kathy,

We can’t evaluate your test results, that’s for you and your doctor to discuss. Make sure you write down any questions you have (what happens next, what happens if…, etc. etc.), so you come away with everything you need.

[hannahrose123]

#1073942

you should get your free t3 checked.
Total t3 just tells you the amount of t3 in your blood, not how much you are actually using.
But even by looking at your total t3 I can tell your t4 is really high compared to your t3.
In order for me to feel good I need my t3 to be higher and my t4 lower.

[Ski]

#1073943

T3 fluctuates frequently (it can be hourly) ~ it’s not always a good indicator, unless you are testing it constantly. If it remains unusually low at every single test, that’s something to consider, but one result doesn’t necessarily tell you much. T4 in your bloodstream is converted to T3 as you need it, which is why is fluctuates so dramatically, even over the course of one day. Talk with your doctor about all the values and determine what information the doctor expects to get from each of them.

[KathyG]

#1073944

I have all my paperwork, questions, etc ready for my optha tomorrow, and then will see my endo in March. I just think maybe I need to ride this out as there seems to be nothing to do at this point but take prednisone and I did for almost two months. Seems to help some, but is hard on a person’s body I think and I will not take it for extended periods of time. And then, after weaning off…you go a couple of days and its seems to come back with a vengence, so was it worth it? All of you that have helped me with new info and support I thank you. I will present my case tomorrow and see what happens, as I still search for an optha that specializes in Graves and its eye problems. Kathyg

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