[Ski]

#1071761

Sounds backward to me too ~ if you’ve been on PTU, it may be the PTU that’s causing you to go hypo, but those values (high TSH, low T4 and T3) are the textbook definition of hypothyroid. Have a VERY frank discussion with your doctor to confirm everything. Typically we do not need a second RAI, and this would be a little early to determine that, even if it were necessary.

Some people do take PTU while the RAI is taking effect, just to keep levels correct, but it shouldn’t be necessary much longer.

My doctor had a, well, let’s be polite, a misunderstanding of my levels once, and almost prescribed me MORE thyroid hormone when my TSH was reading low. I politely inquired about my understanding of the test results, at which point I heard "oh, you’re right, you’re right, you need to take less instead." We are definitely our best advocates in health care. Good spottin’, Tex. ” title=”Wink” />

[cashopgirl]

#1071762

Thanks Ski! I am going to call him first thing in the morning!

[Jake_George]

#1071763

Speaking with your doctor is in order. It is important that we understand why the doctor wants to follow a treatment option. If we are not sure why we need to ask.

I think you need to ask why a second RAI may be the treatment needed. Do not let them pass you off. Until you know why and are comfortable with it you have the right to know and understand.

[cashopgirl]

#1019458

My dr said today we may need to do radioactive ablation again on thyroid (I just had that done in January). However, I think he may be incorrect…. or maybe I am not reading something right.

My TSH prior to Jan was .004 (abnormally low) with Triiodothyronine being at 13.6 (high) and T4 at 4.12 (also high). So – I had the radioiodine ablation thing done in late January.

NOW, my bloodwork has flipflopped to be: TSH 18.363 (High) and Triiodothyronine is 1.0 (low) and T4 .4 (low).

Dr had me taking 200 mg PTU, but after today, dropped me to 50 mg. But, won’t PTU continue to lower my TSH? And, why would I need to have ablation again?
He mentioned my results still being high, but looking at the paperwork tonight, everything has gone the other way so what was high was low, and what was low is high. I think I have gone from hyper to hypo thyroid.

Shouldn’t I be on some type of thyroid replacement (levothyroxine?) instead of taking PTU? I am so confused. I need to call his office and see if I can speak with him (either that, or time to get a new dr!!) Any suggestions or info on why he still may have me on PTU instead of thyroid replacement? Any idea why I would need ablation again?
Thank you in advance!

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