[Kimberly]

#1071741

{{{{{{Hopeful23}}}}}}

Sounds like you are due for a run of GOOD luck soon.

Take care – we are here for you!

[ShirlSue55]

#1071742

Dear Hopeful23,
I am so sorry for all your losses recently–I have already said a prayer for you and will continue to do so. You need to be comfortable with your decision treatment and it sounds like you are. It’s your body and your treatment decision. My uptake scan was 54% and I had RAI on Feb. 25th. My dose was 20 millicuries. I was only "isolated" from sleeping with my husband for 3 days. I had to limit exposure to other people–like no more than 20 min. at 3 feet kind of thing. I had a sore throat that started a few days after the RAI which lasted about a week and I felt my "worst" about 4 weeks after RAI treatment. My levels are starting drop now towards hypo and I am starting to feeling better but know it will be months before my body can begin healing from all the effects of being hyper.
I have been on short term disablity during this and am returning to work for half days next for a week then fulltime if I’m able. I hope your disability gets approved so you can focus on regaining your health.
It’s normal to hurt and be angry after enduring a loss and you have had more than I can even imagine. Being able to acknowledge that hurt and anger will help you heal.
I will pray for you Hopeful23.
Shirlee

[Hopeful23]

#1019454

Hello everyone,
I’m not sure if you all remember me. For those who do. I want to share the past few months with everyone.

I finally got my levels up and my Endo has agreed to use the RAI as treatment. He really wanted me to have the total thyroidectomy but as I posted before I ran out of the room crying in fear. I just had this gut feeling and i choose to have the RAI done. I am still very scared and nervous that i might have a-fib or extreme sickness from this but im okay and feel good about choosing this treatment. I go the May 7 and 8 for another reuptake scan my last one read at 55% and my endo said that was way above average and that my thyroid was literally "wanting" the treatment. For those of you who didnt have thycncr and was given just the hyper dose could you please email me any stories so i can know the worst and hope for the best. I would greatly appreciate it.

I have been really struggling over the past few months with this disease not even so much as life and symptoms but just lost baby number 5. I just miss carried a few days ago and although i know it was the best for me and my baby at this time i am hurting and blaming this GOD AWFUL DISEASE. I also find out if i get approved for disability within the next week or two. Cross and pray that I do because I also have a gut feeling my treatment isn’t going to be as easy as going in taking the pill glowing for a few days and boom hypo… although i have read stories of that nature I just don’t feel that would be my luck.

If anyone could help make me more confident please let me know. I LOVE YOU ALL…

Ps. Sorry its been so long but during the past few months my pc crashed, I lost my job, lost my bf, My apt, MY dog, and just recently my brand new car and baby ” title=”Sad” />…. Please put me in ur prayers cause you all are in mine everynight…

[Mickey65]

#1071743

RAI is a piece of cake. I was scared too, but nothing happened after I took it. It was as if I took an aspirin!

I just spent my 3 days in "isolation" hanging around the house, eating junk food and watching some good movies on TV, and hanging out. It’s REALLY no big deal – I swear! ” title=”Wink” />

[Hopeful23]

#1071744

Wow, I am a lot more at ease now. Thank you Three for the prayers, thoughts and support. I really appreciate it. I will be back and forth on here to read everyones new blogs, updates, & guestions as well as the updates for the 7 8 and 12….

LOVE
Krystal ” title=”Smile” />

[RhondaG4]

#1071745

Hopeful,
I go in next Wed for my RAI..and I too am scared. I lost one baby about 7 years ago..she was born too early. I understand what your going thru. I don’t know if it was because of Graves, but all of my children have been early, so I could make that assumption.
And you’ve been thru so much, your in my prayers. I too have been thru more then my fair share of health problems, and they seem to just keep on coming along lately. But I have to believe that I am still here for a greater reason and purpose.
My uptake was 45% and I don’t know yet what dose the doc has planned for me yet. My levels right now are somewhat normal compared to most people…or the other meds I’m on are fooling the blood levels, I’m not sure which.

I’ll keep you posted as to how I feel after my dose. I had a brain bleed stroke after my last little one was born almost 2 years ago. I also have Osteopenia too, and they are testing me for another auto immune disorder now, just waiting for the blood work to get back. The steroids I take have my white cells really high and they can account for that…but endo is sending me to an oncologist anyway because of the red cells being up.

I have to believe that everything happens for a reason and a purpose. Hang in there, and if you want to PM me or IM me…just send a note if you need someone…anytime…most of the time I have insomnia from the steroids, so I am up at all hours of the day and night. Take care sweetie. Hope this helps. Rhonda

P.S…..a song that might help you…..might be able to find it on you tube…Praise you in this storm…really good song.

[hyperm]

#1071746

Hey,

Firstly, I am so sorry to hear of your loss. I have had 2 m/c and I know how devastating an effect it has had on my life as taking all my confidence away as a woman. If you need some support please PM me I truly understand how you feel.

When my endo first suggested removing my thyroid – I was like you NO WAY! Just the thought was terrifying. However, after recent events I have come to the conclusion – like you with the RAI treatment that this is the best process for me and also he reassured me that my chances of m/c go back to that of a "normal woman". 2 of my friends have had it and are great now – all be it tinkering with thyroxine at times – otherwise they feel great!

It is only recently that I have started to count my blessings with this terrible disease. I am a very anxious person when it comes to my health – not neurotic but just very nervous and like I was saying to Emily I know my luck when it comes to 1 in 1000 people have side effects – well I am that one.

However, I was always worrying about TS and WBC suppression with the meds – and both happened to me recently. I thought I was going to go crazy etc.. However, recently I feel as though God has shown me that he is in control and allowed for these things to happen to me to show me that I came through them. By no means am I slating the severity of them but I have learned to accept.

Hang in there. You have had a terrible time so try and be gentle with yourself and please don’t hesitate to come here for support.

Lots of prayers, love and comforting hugs

M x

[knitlit]

#1071747

Hopeful-so sorry that you have been going thru such a rough time.

I had RAI treatment for my Graves on Mar 20. I have been very blessed in that I haven’t had uncomfortable symptoms, so didn’t even know I had GD until after going thru more diagnostics after a routine physical. I felt fine until I went to the DR in other words.

My uptake results were 58%.

I do have slight TED in my left eye, so I was concerned about RAI and it affecting me in other ways also. So far, no side affects. I was given 15 milC. I go on Wed April 29 for my followup to see where I am at now. 2 days after the RAI I have also been taking 2 Methimazole a day, (20 mg total) I hadn’t been on any thyroid or antithyroid medication prior to the RAI. I am also on a beta blocker that I just take 1 of.

By the 2.5-4th week mark after the RAI, I was taking lots of naps. I worked my normal schedule, but as soon as I got home from work I was taking a 1-2 hour nap, then still going to bed by midnight and sleeping through the night. On my days off, I have sometimes had 2 naps a day. I have felt OK otherwise, and in fact this week, which is my 5th since the RAI, I haven’t been as tired.

So far, no ill affects from the Methimazole. But I will be glad when they tell me that I don’t have to take it anymore. I don’t like taking meds, much less meds that could affect my WBC’s.

Surely, the light at the end of the tunnel is in sight for you now. I will keep you in my thoughts the best of luck, and hopefully you will be reporting an ease in your symptoms soon. Blessings to you.

[mamabear]

#1071748

I remember you. It’s been about 4 months since you were in…I think last you said no to the surgery in a post and then you stopped posting.

I am so sorry to hear about the loss of your baby and your dog. I’m sorry that you and your bf aren’t together any longer either. I haven’t had RAI, I opted for oral medicine and since I do so well with it I didn’t do the RAI. But from what I heard it’s like the other posters said.. Take it and wait the amount of days they say to and done.

You said you lost your apt., do you have a place to stay?
Do you have a way of getting there?

If you have another apartment, make sure you clean it up before doing this and make sure you go grocery shopping before hand so the house is full of stuff in case you just wanna sit and vegetate for the time they say to stay away from people.

Use this time to sit and relax and mourn the losses that you have had, it is the only way you will heal. Sit and think about the happy future you will have by doing this and once your levels are better how fun it will be to have your life back.

What I’m about to say next no one has mentioned but I am going to and please know that it is with all the caring in the world that I say this… During this time it might be a good idea that you try not to get pregnant. I’m not saying you were trying before baby #5, but I am saying that whether you were trying or not you shouldn’t be trying now and in fact you should be avoiding it at all costs. when I went in for RAI consultation with a radiologist he said that I shouldn’t get pregnant till about 6months afterward. I didn’t opt for that RAI so I didn’t have to think about that but i was told that while on PTU(oral medicine) that I couldn’t get pregnant till my levels were better.

I know you said you just lost your bf, but I would make sure that during this time that you be careful with whomever you are with to make sure you don’t get pregnant. Healing is in order here and your body and your heart need it. Let it happen then when your levels are better and you are in a better place with your health you never know what could happen!

My #4 was something we weren’t expecting after I was on medicine and then off meds for 7months. I was thrilled I didn’t have to back to a Reproductive Endo to have another child. Finally my body was healing and it showed.(2nd and 3rd children I had help with and 1st one I did on my own as well but that many years before).

Many hugs and prayers to you as you heal from all of this loss and stress. Smile when you can because that will help your healing. We’re here for you !!!! Vent away and ask as many questions as you wish!!!!
You’ll do fine and in the end you’ll feel so much better. Keep us posted, since you’ll be home I’m sure you’ll be posting!!!

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