[Ski]

#1070531

It does seem odd, if her T3 and T4 are normal ~ our best advice would be to stay in close contact with the doctor, and make sure she has her blood tested quickly if she feels hyper symptoms (I’m sure she recognizes them!). Sometimes the hormones generated in pregnancy can affect the thyroid hormone levels, but you’d think it would be affected "rationally," if you know what I mean ~ one would drop and the other would rise. If this dose increase doesn’t bring her TSH down, and yet doesn’t make her hyper either, that’s truly weird. I would want to go visit an endo or general practitioner to see about other causes.

[bradybunch6x1]

#1070532

I just wanted to say, that I have been told by my doctors during all the times I was pregnant, that TSH is sometimes elevated during pregnancy, and that they never treated me due to TSH levels, they said I would have med changes if my FT4, or three levels were changing. In pregnancy you will find that false elevation of TSH does happen. A good Endo would let you know that. I to would also keep in contact with doctor, and if not being treated by a thyroid specialist would also do that. Your daughter also needs to have her TSI tested at this time.
Valarie

[Kirstie]

#1019281

My daughter was diagnosed with Graves’ at 16. For several years she was treated with Tapazole, with success, but they were never able to achieve remission. So, a little more than 2 years ago when she was almost 20 she has RI treatment. It took nearly two years to regulate her levels after that, but by early 2009 they were at last staying in a good range.

She is now expecting her first child – due in November. Three weeks ago was the first time her thyroid levels were tested since she became pregnant. Her TSH was 14.69 so they increased her dosage of Levoxyl. She was tested again today and now her TSH is 20.19 – her T3 and T4 are normal. Again, they are going to increase her meds.

She is concerned about this as she feels good. She can usually tell when her levels are off. We asked the nurse about the possible reason for the change in levels, etc., but were just told not to be alarmed and to be sure to take the thyroid med alone on an empty stomach.

Does anyone have any experience with a similar situation? Thanks!

[Buttamama28]

#1070533

Being one who was very concerned during pregnancy, because of previous losses; I questioned everything. She must be very careful. True enough a good Endo wouldn’t have gone up just because of TSH. I also looked up alot of those meds, and they were a Class D on the FDA chart (A-D; D being the most harmful during pregnancy). I changed Endo’s at the early stage of pregnancy, because my doctor told me (when I questioned the class of all my meds) that she was more concerned about my Graves’ then my pregnancy; and that the health of my unborn child was second. Of course, with hightened maternal feelings, I was concerned about us both. I said that to say this; make sure the Endo has both mother and child’s best interest in mind.

[Kirstie]

#1070534

Thanks so much for all the info! It’s hard to switch doctors after so many years with the same one. (She was still with her pedi-endo until the pregnancy.) I made another call to the new endo this morning to follow up on some of the things you all brought up. The doctor is supposed to give me a call back. When I got additional details from the nurse this morning, I was told that my daughter’s T4 , FT4 and TSH were tested yesterday – that was all. T4 and FT4 were well within normal range. If anyone has any other suggestions regarding things I need to check on when I speak to the doctor, please let me know. Thanks!

[bradybunch6x1]

#1070535

Kristi,
Please make sure that this Endo does check your daughters TSI now, since it is the beginning of the pregnancy, they need to get a baseline for this antibody, so that they know if it is rising or not. This is very important in a pregnancy. This can tell them weather or not they need to be doing more monitoring of the baby. I have posted on here just recently about my pregnancy, and I hope that you find the chance to read it. It is pretty much what can happen if you keep the doctors doing what they should. Since your daughter is pregnant she should also be seeing a specialist for her pregnancy, a Maternal Fetal specialist. That way they can monitor her closely. She is a high risk pregnancy. You might have your primary doctor refer her to one. That is what is best for both her and the babies outcome. The specialist was able to manage both my thyroid levels and the babies, without an Endo, so that to might be possiable for your daughter(but I’m sure is not always the case). Anyway good luck to you both, and if you have any questions, I will try to help. Since I have been down this road before.
Valarie

[bradybunch6x1]

#1070536

Forgot to mention that I listed my post under Neonatal Graves disease.

[gillasey]

#1070537

How long after an ectopic pregnancy is treated with methotrexate can you start trying to concieve again? My last pregnancy was an ectopic and it was treated with methotrexate by one injection and was told not to try to concieve till after 6 monthes. But have heard others trying right away, like within a month. We are anxious to try again but, scared that if we start trying again of running the risk of another loss, or even birth defects. Any advice?

[Ski]

#1070538

Sorry, this isn’t a question we can answer ~ definitely not in our area of expertise. Check with your obstetrician to know for sure.

[alice1976]

#1070539

I am 17 weeks pregnant, and had a total thyroidectomy last October after diagnosed with GD. I was on levothyroxine while I got pregnant (T4 of 175) and TSH was 5 when I was 4-5 weeks, so I increased the medicine to 200. Anyway now I am taking 250, first thing in the morning,and at least 30 minutes before breakfast. I take calcium after 4 hours and any other vitamin like iron after more 4 hours. I test my hormones every three to four weeks and if tsh is 2.5 -5 Increased medicine by 0.25. If tsh is between 5 – 10 I increased medicine by 0.50. These seem to work for me. TSI at the first trimester was negative. I will test again at the last trimester. I hope that it will go well for both your daughter and me and I also hope that I helped by telling you what my Endo suggests. All the best

[hyperm]

#1070540

Hi Alice ,

Glad all is going well – I was thinking of you the other day! Almost half way there! ” title=”Smile” /> ” title=”Smile” /> ” title=”Smile” /> ” title=”Smile” /> ” title=”Smile” /> ” title=”Smile” />

[alice1976]

#1070541

hello!!!! ” title=”Smile” /> Everything is going well up to now, I am a little bit worried about neonatal grave disease, but I hope everything will go fine! i have still issued with my right eye and guess what…it is a boy!!… Again!!! All the best

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