[Hopeful23]

#1068963

That is AWESOME NEWS. Can’t wait for updates. Im sure they wont put you back on it. Ill chck back for your results today ” title=”Smile” />

hopeful23

[ewmb]

#1068964

Back from the doctor and the blood work will be back tomorrow afternoon. Kyrstal, did you feel really bad that week your heart rate was down before you went to get your blood work done? I am having headaches and feeling really tired. Had to come home from work at 10:30 this morning and take a nap. I only got up at 7:00 this morning.

ewmb

[ewmb]

#1019064

I am headed to the local doctor this afternoon to have a blood draw. My pulse average through the day has been going down and this morning was the first time in forever that my pulse was under 95-96 in the morning. It was actually 86. Isn’t it funny how we are all so attached to numbers with this disease? I am thirteen weeks out from RAI so am hoping this is a good sign. My rash has spread some and is still itchy but I got some hydrocortisone cream over the weekend to help out. I hope I don’t need to go back on the methimazole.

I’ll post again when I get my results.

ewmb

[ewmb]

#1068965

Well, the news is not encouraging. TSH is .0004. Is that even worth reporting? The nurse forgot to ask for the Free T4 so I don’t have that number to compare with last time. Anyway, I’ll have to decide whether to go back on some methimazole now. The rash is now crusty so I think it’s near the end. I am wondering if anyone knows the answer to this question: Does the fact that my FTI has gone so high an indication that there is more hormone begin released- or more being made- or is there a way to tell the difference? I am hoping that it means that mored stored hormone is leaching out.

I have a sore throat again now too so am wondering about that. Did anyone else go through all these ups and downs after RAI.I was expecting it to be just down and then up.

ewmb

[runlacie]

#1068966

ewmb- I’m not sure exactly what FTI is? Free thyroid index, but what’s that? Did you have it done before and now it’s higher? I know you say your TSH is low- but that one lags behind, right? Are you going to have the T4 done now since they forgot? I, for one, am sure hoping the sore throat is a good sign. And also wasn’t expecting the ups and downs. I know you’ve been on this ride even longer than I have, hope you get some answers and feel better soon.

[ewmb]

#1068967

lacie,
From what I read in a book the FTI is the Free T4 multiplied by the T3. Since it is high I don’t think I need to go back for the Free T-4. They did the total T-4. It’s just really all bad news right now it seems. I am really not sure about going back on any medication. Does anyone know the risk of Thyroid Storm after RAI? I think the TSH does lag behind but having it go lower each of the last three tests is definitely a downward trend.

ewmb

[runlacie]

#1068968

ewmb, yeah, you’re right- if they did the FTI I guess it makes sense you don’t really need to do the other. Did you figure out a plan yet? How are you feeling the past few days? I hope you get some answers soon.

[ewmb]

#1068969

Lacie,
I am waiting for the doctor to call in some medication for me. I have decided to try the brand name tapazole for a little while to hopefully get me back on my feet. I have been off work for several days and can’t seem to go. I sleep a lot and can’t concentrate. Sounds familiar huh! My period is scheduled to show up but I’m not sure it will. Going into menopause on top of this is making it hard to sort things out. I am hoping that this is the last of it and that it will start coming up. I read on one of your threads about someone who had their worst at 3 months out so I have another example of how everyone is different. I am taking on weight too. When I am like this I don’t care what I eat and I am a wreck anyway so I bake. It makes me feel productive and then of course you have to eat what you bake. My daughter’ s been at band camp 8-8 for two weeks. My son is leaving for college next week and I am supposed to visit parents this weekend.

AHHHHHHHHHH

Hope the medicine comes soon and they thyroid keeps dying.

ewmb

[runlacie]

#1068970

ewmb- yeah, that was good news about the 3 months on the other thread. mmm, baking! I don’t cook, especially not now with an excuse ” title=”Wink” /> but lately just thinking about food is making me fat! Was it the generic that made you get rashy before? Hopefully then, this will work for you for a while. You have a lot on your plate right now. It’s crazy how the world just keeps going while we are in limbo and we kind of have to pretend like nothing is wrong and just keep moving along with things. Take care and don’t get stressed about all the stuff you have going on. We’ll make it through this.

[ewmb]

#1068971

Lacie,
Most likely it was one of the inactive ingredients in the generic called povidone. It apparently makes a lot of people get a rash. Still no word from the doctor on the new scrip. I even called the drug store to check. Maybe it’s fate that I go without it. Maybe I don’t really need it. Maybe it’s all been a bad dreammmmm LOL I’ve only taken two naps today so far.

Good news on my office move, they are giving the old office I’m moving too new carpet but there isn’t really any furniture in it so I’ll have to work out of boxes for now. My boss is nice and said not to worry about the move until I feel better. I told the secretary to go ahead and let them move everything is they want to. It could be months until I feel better and I won’t ever feel better about moving to this yucky basement office. I haven’t gone to work since Monday anyway. I’m lucky that if I run out of sick and vacation days, which I did quite a while ago, that they just dock my pay. At least I’m keeping my job for now.

Maybe seeing my Mom and Dad will be good for my soul. They have even reserved a hotel room for my family to stay in so it’s less stressful. Lots of family coming at once.

ewmb

[ewmb]

#1068972

Well I didn’t get to go visit today. Woke up with fever, headache, sore mouth feeling generally gross. My mother thinks I have the FLU. Finally got my tapazole today after the pharmacy had lost the phone in, found it, told me they didn’t have any, said yes they had ordered it last night, finally husband went and got and had to pay out of pocket for it as it was less than the co-pay $50 for it being a third tier drug. No wonder people would rather have the generic price………. Health care in this country needs help. The rash is almost all gone so hoping this brand name doesn’t make me itch.

ewmb

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