[runlacie]

#1019043

Well, it has been a pretty uneventful 4 weeks. I can tell that I am slowly coming down from the heights of my hyper-ness. My sore throat that I had on and off and then steadily in week 3 has been better. Not gone, but definitely better. So perhaps the little buggers are just about done frying in there. My resting heart rate is down- but still slightly elevated from my normal. My heart rate standing up is falling, but also still elevated. I feel sleepy sometimes and can yawn and take a deep breath now, where before I couldn’t. My heart used to race the worst right when I’d lie down to go to sleep- that has gone away. I have started gaining weight. Sometimes I feel cold, and I can actually sleep with the sheet on me now. I know I’m not all the way better cause I still can not run fast without spiking the heart rate- so I’m still mostly just walking. I get my levels checked for the first time on Thursday (which will be one month) and I bet they will be close to normal but still on the hyper side. We shall soon see! Thanks again, to all of you for being great support throughout this mess.

[Hopeful23]

#1068651

Lacie,
Hey, you are going through exactly what I went through. Stay strong your almost to the other dark side..LOL…. Continue to keep us updated ” title=”Smile” />

Love
Krystal

[runlacie]

#1068652

hahahahaha, see you on the dark side, Krystal!!! Seriously, how many weeks was it before you went super-hypo? Was that one where the tsh was really high the first blood work they did or did you have one done before that?

[Hopeful23]

#1068653

Lacie,

I had my RAI May 12 08. Had my first blood draw July 22 still read slightly hyper at .01 TSH then July 22 I had gone a week early cause I felt really weird. Mad, irritated, cold, pale, sloooooooow heart rate and my TSH was 85.3 so i was prbly hypo for about a lil under a month….

[vintagegreen]

#1068654

Lacie,
I love reading about your journey, even though I’ve not made a permanent decision/course of "treatment" yet. It is very interesting to read about your updates and experiences in case I decide to do RAI. Krystal, you’re great too!

April

[runlacie]

#1068655

Krystal, thanks for the info. So you were still sorta hyper at your first draw then. I think I probably will be, too. Just worried since the dose was so small that mine isn’t going to work. And I don’t think I can stand to wait 6 months so they can do it all over again. I can tell that I am better than I was, but definitely not all the way there yet.

April, Hi! I am glad maybe this is all helping someone else. I know that reading about Krystal and others’ experience has really helped me. I’m still not sure that rai was the best decision for me. I think maybe I would have gotten normal faster on the pills, but if this works in the end I will be happy. I guess the downside of the pills is that I have some hypochondriac tendencies and I think I’d always be freaking out about possible side effects. I have found many people outside of the board who have had great results with rai and also with the ATD’s. When do you have to decide by?

I ran (well, really slowly jogged) this morning. It was my first time back on one of my favorite little routes. I have run a bit the past week or so, but have mostly stayed in my subdivision- kind of afraid to venture out. But this morning I did. Probably the slowest 2.6 miles ever, even slower than when I first started running, but hey- it’s a start. And I sure felt good!

[Andros]

#1068656

runlacie wrote:Well, it has been a pretty uneventful 4 weeks. I can tell that I am slowly coming down from the heights of my hyper-ness. My sore throat that I had on and off and then steadily in week 3 has been better. Not gone, but definitely better. So perhaps the little buggers are just about done frying in there. My resting heart rate is down- but still slightly elevated from my normal. My heart rate standing up is falling, but also still elevated. I feel sleepy sometimes and can yawn and take a deep breath now, where before I couldn’t. My heart used to race the worst right when I’d lie down to go to sleep- that has gone away. I have started gaining weight. Sometimes I feel cold, and I can actually sleep with the sheet on me now. I know I’m not all the way better cause I still can not run fast without spiking the heart rate- so I’m still mostly just walking. I get my levels checked for the first time on Thursday (which will be one month) and I bet they will be close to normal but still on the hyper side. We shall soon see! Thanks again, to all of you for being great support throughout this mess.

I am so so glad to hear that you are tamping down on the hyper. It takes a while but you "will" get there. When are you due for labs? It sounds like you have not quite turned the corner yet to hypo. I presume you are not on thyroxine replacement yet?

It will take a good 18 months to fully recover (that seems to be about the average) but you will have those running shoes on before you know it.

Lu Anne

[runlacie]

#1068657

Hi Lu Anne! I have my first blood work drawn on Thursday, it will be one month for me. No replacement yet. And I think you are correct- I’m not hypo yet (and probably not even "normal"). Thanks for your kind words ” title=”Smile” /> Did you have rai??? I only was given 7.3 mci so I’m worried it won’t work, or won’t completely work- since that is lower end dose.

[vintagegreen]

#1068658

Lacie~
I was planning on having the surgery b/c I wanted my old life back–no matter the costs. I wanted to do the surgery as soon as I was clinically euthyroid, but after meeting with the surgeon I was hesitant—first, he was evasive when I asked him about the # of surgeries he performs. I’m wondering if it really matters how egotistical he is: maybe he is the best one in town (I had to wait 3 weeks to see him and then 2 hours in the lobby, and then only for a 10 minute consultation). He seemed to know his stuff, and having it out is very appealing: I’m trying to face the hypo-world headstrong, well, because it is inevitable!–and second….i am currently hypo due to overmedication, so I can’t have the surgery until i get back in the normal ranges…hopefully that will be soon! My appt. is in the end of August, so I’m hoping I can schedule it then.

I wonder if having the RAI back when I was diagnosed 3 months ago would have been a better solution…..

Keep us updated!
April

[Andros]

#1068659

runlacie wrote:Hi Lu Anne! I have my first blood work drawn on Thursday, it will be one month for me. No replacement yet. And I think you are correct- I’m not hypo yet (and probably not even "normal"). Thanks for your kind words ” title=”Smile” /> Did you have rai??? I only was given 7.3 mci so I’m worried it won’t work, or won’t completely work- since that is lower end dose.

Hi, Lacie……….glad to make your acquaintance. Get ready; I had 3 RAI. Unbelievable but oh, so true. That nasty gland did not want to give up the ghost. I did have a very large goiter and you know they have to be very very careful with the dose of RAI; they cannot just give you any ol’ amount.

And each time, I "dumped" thyroxine into my system. I was so so sick. But, the good news is I am doing very very well now many years later and you will also.

Lu Anne

[runlacie]

#1068660

Hi April! I’m not so sure about rai being the right thing. I hope you find the choice that is perfect for you, but sheesh, it’s hard to know which one is going to be best for us, isn’t it??? My gut wrench reaction when I found out that I had this was OMG, just take the sucker out of me and FAST! But then the more I thought about it, I was afraid of being in the hospital. Now, looking back, maybe that would have been the best bet. And now I have met some people who have had great results with ATD’s and it sorta makes me wish I’d have given them a try. But, who knows? I feel like it’s a crap shoot. Roll the dice and see what happens, if you know what I mean?

Hi Lu Anne! Geez, 3 times you went through it? I don’t know if I will want to wait 6 months and try again, but don’t know what choice I have, either. I got a smallish dose because my thyroid was small, I guess. But I bet if I would have got a more normal dose then this all would have worked and been a little quicker at it.

Today I feel hyper again. OH NO, it’s coming back!!! And that really stinks since yesterday I felt really good. Now my heart rate is back up and I feel jumpy and like I’m talking too fast and just overall hyper again. I totally don’t get it. Why such a roller coaster, after 4 weeks I’d think I was just going to slowly sink down into hypo!!! My heart rate is 20 higher than yesterday was while I was sitting at the computer! Labs tomorrow…. Will this be another little bump and I’ll eventually go hypo (or normal)? Or am I on my way back to hyper??? Stay tuned for the next episode…

[Andros]

#1068661

runlacie wrote:Hi April! I’m not so sure about rai being the right thing. I hope you find the choice that is perfect for you, but sheesh, it’s hard to know which one is going to be best for us, isn’t it??? My gut wrench reaction when I found out that I had this was OMG, just take the sucker out of me and FAST! But then the more I thought about it, I was afraid of being in the hospital. Now, looking back, maybe that would have been the best bet. And now I have met some people who have had great results with ATD’s and it sorta makes me wish I’d have given them a try. But, who knows? I feel like it’s a crap shoot. Roll the dice and see what happens, if you know what I mean?

Hi Lu Anne! Geez, 3 times you went through it? I don’t know if I will want to wait 6 months and try again, but don’t know what choice I have, either. I got a smallish dose because my thyroid was small, I guess. But I bet if I would have got a more normal dose then this all would have worked and been a little quicker at it.

Today I feel hyper again. OH NO, it’s coming back!!! And that really stinks since yesterday I felt really good. Now my heart rate is back up and I feel jumpy and like I’m talking too fast and just overall hyper again. I totally don’t get it. Why such a roller coaster, after 4 weeks I’d think I was just going to slowly sink down into hypo!!! My heart rate is 20 higher than yesterday was while I was sitting at the computer! Labs tomorrow…. Will this be another little bump and I’ll eventually go hypo (or normal)? Or am I on my way back to hyper??? Stay tuned for the next episode…

Egads, I am not happy to hear this. I have to tell you that often times the thyroid tissue can and does grow back so if you don’t get settled down in that department, it may be wise to have another radioactive uptake scan. That is in fact what I had to do prior to "each" of my RAI because they needed to be positive of the problem so to speak.

Give it another couple weeks and see what your doc has to say………..

Keeping you in my thoughts, Lu Anne

[runlacie]

#1068662

Lu Anne, thanks for that quick response! Did you have to wait 6 months each time you had another RAI? That’s what I don’t want to do- wait anymore. I’m hopeful that this is just another die off, since I did feel like this once before and then it went away. Kind of like 2 steps forward, one step back? I wasn’t expecting all the ups and downs, or maybe I am just more aware than some people (since I’m kind of obsessive and wear a heart rate monitor and keep track of my pulse). I’m sure I’ll still show as hyper on tomorrow’s blood work, but I did think I was heading in the right direction- now I’m not so sure.

[RhondaG4]

#1068663

Darkside….I’ve heard they have cookies on the darkside!!!!!*ROTFL*

[runlacie]

#1068664

hahaha, Rhonda… Cookies and cake, too???

Bloodwork today. Wonder how long it’ll take for results. I can’t go until after work, but I should be done at work by noon.

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