[ewmb]

#1068644

I had the kind of pain you are talking about when I was on methimazole. I woke up one morning and couldn’t stand. The doctor on call said it was like an overdose and to not take it anymore that weekend then and then they put me on a much smaller dose and I was fine after a while. I have had fibromyalgia and arthritis for a while so I’m not sure how it would have felt if I hadn’t known that pain. I’m sorry for your troubles on the medication. It can be such a good thing to get your levels down but then things like this happen. I had an awful rash on one generic of methimazole and am now on brand name tapazole and seem to be fine. I am on a very low dose right now to get me through my RAI healing.

Do you feel like the pain is so bad but you want to move all the time? That’s what I remember. Having to walk around and move even when I was in pain.

Let us know what happens.

ewmb

[MommysSick]

#1019042

Oh, I am in so much pain the past week. Joint pain that is. How freaky is it to have joint pain move from one joint to the next. I went and seen my family practice doctor today. She thinks it is a side effect the 1-2 % of people on Tapazole can get. I would have to be that person. Good thing is the swelling in my eyes has went way down. But now this new thing. I had to stop the Tapazole right away. Just waiting foe new labs to come back to see what my thyroid dr is going to do. TThey said the other thyroid meds I would have the same reaction. I am in pain. Saturday the pain was in both my upper arms I could not even fold a towel. Now it is in my knee, ankle, arch of my foot and starting in my wrist. I have been doing heat compresses, hot bathes, muscle pain rub and pain meds nothing is helping! Anyone have this and have any ideas what might help me. tonight I cannot even walk. Hubby is working so my mom took my kids home with her to help me.

[susant]

#1068645

Hi

Here is something I posted a couple of months ago:

I remember coming back from the gym and feeling like I was giving birth out of my toes…ahhhhh. I experienced incredible pain about 4 weeks after I started on anti-thyr drugs. It was particularly painful when I was at the gym . I discussed this with my physio who consulted an endo, and came to the conclusion that it was due to a change in metobolic rate. I decided to take an anti-inflammatory (voltaren) and a vit c morn and evening. It calmed down after about 4 weeks. I felt extremely frustrated about the fact that I was putting on weight (fast) and not able to work out to combat it. Hope this helps, please consult endo about anti-inflammatory advice.

All the best – it does get better!

Susan

[Sue_Conard]

#1068646

Hello MommysSick:
I agree with Susan, in that, I’ve been on methimazole since October 2008, different dosages (right now I’m on 60 mg.) and I didn’t experience any muscle or joint pain UNTIL a month ago & I too, couldn’t get out of bed. I ended up taking Tylenol for arthritis pain and IT WORKED for me!! I also had Solumedrol IV Infusion treatments within a month afterwards as well. I’m not sure it’s the methimazole, I believe it could be the change in metobolic rate too. I hope a facilitator can confirm this for you. The PAIN is HORRIFIC, I KNOW!! Let us know how you continue to get along.

[Andros]

#1068647

MommysSick wrote:Oh, I am in so much pain the past week. Joint pain that is. How freaky is it to have joint pain move from one joint to the next. I went and seen my family practice doctor today. She thinks it is a side effect the 1-2 % of people on Tapazole can get. I would have to be that person. Good thing is the swelling in my eyes has went way down. But now this new thing. I had to stop the Tapazole right away. Just waiting foe new labs to come back to see what my thyroid dr is going to do. TThey said the other thyroid meds I would have the same reaction. I am in pain. Saturday the pain was in both my upper arms I could not even fold a towel. Now it is in my knee, ankle, arch of my foot and starting in my wrist. I have been doing heat compresses, hot bathes, muscle pain rub and pain meds nothing is helping! Anyone have this and have any ideas what might help me. tonight I cannot even walk. Hubby is working so my mom took my kids home with her to help me.

Oh, my gosh!!! I know we will all be interested in your labs when you get them. In the meantime, I have a tendency and a very strong one to agree w/ Susan. Your metabolic rate is changing due to the antithyroid med and peripheral neuropathy has reared it’s ugly head.

Sending very gentle hugs and I hope you feel better as of this posting. Lu Anne

[kit1960]

#1068648

So sorry to hear you are in so much pain. I just posted a question a few minutes ago. In addition to GD, I also have TMJD. My oral/maxillofacial surgeon has had me on Tylenol w/Codiene for a few month now to control the pain. However, after doing some research last night on the internet, I found out that this medication shouldn’t be taken long term, as it can affect persons with an underactive thyroid. I think this might explain why my last set of labs showed that my levels were low. My endo had to increase my daily dosage of Synthroid. I also discovered that muscle relaxers such as Flexeril are not good for people with overactive thyroids. It’s such a vicious cycle. Just wanted to pass this info on to you in case your doc wants to put you on prescription pain meds. Opiate based pain relievers are okay for short term use, such as after surgery, but should not be used long term, like I was doing. I truly feel for you and hope you get some relief soon. Kit

[kit1960]

#1068649

Hi MommysSick,

Just checking in to see if you’re feeling better today. Post when you can and let all of know how you’re doing.

Kit

[Author]

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