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  • ewmb
    Participant
    Post count: 484

    Hi,
    It takes several months for the radioactive iodine to have it’s full effect so you will still feel the hyper symptoms for a while. I didn’t have any itching. That may be a reaction but haven’t heard of it. Your throat may feel off for a few days. Keep drinking a lot and sucking on candies or chewing gum. You should be able to take some pain medication like ibuprofen if it gets worse. Good luck with your treatment. It took me about 4 months to have mine show progress in my tsh readings.

    ewmb

    ncgal
    Participant
    Post count: 4

    Thanks ewmb…I am a little scared that my heartrate is going to get really high again, like it did when I had to go in the hospital. Best wishes for your recovery!!

    ewmb
    Participant
    Post count: 484

    Sounds like your beta blocker should be helping keep things under control. Are you taking it once a day or twice a day? I was on a bb for a short period of time. I just took it once a day but some others here have had their doses spaced out through the day. Take it easy and rest a lot. I sat in an arm chair a lot right after my RAI. Keep drinking and eating too. I had a rash with one of my generic atds and that was scary but not like your reaction. I’m glad that you are on your way to recovery.

    ewmb

    ncgal
    Participant
    Post count: 4

    Hi everyone,

    I have been hyperT for several months now and have actually been hospitalized once to try and get my heartrate under control. I was diagnosed with Graves Disease while I was in the hospital. My symptoms were: rapid heartrate, trembling hands, hair loss, dry eyes (but watering like crazy), and hot flashes. I also was very moody. I tried Methimazole at 10mg 3X a day, but the side effects (when they started 3 weeks into it) were so terrible I had to get off of it, and my Dr. suspected an adverse reaction to it. I had severe heartburn, acid reflux issues (I already take Aciphex for this, and it was previously working fine) and stomach pain. I also was having hives, and itching inside my throat. Of course my Dr. took me off of it immediately, and refered me to someone who does the RAI treatments. After weighing my options, I chose to have the RAI, and did yesterday morning. I noticed this morning when I got up, that my heartrate is back up from the 70’s to the high 90’s. If anyone has had similiar effects from the RAI, please let me know what I might expect in the next couple of days. I take 50mg Metoprolol 2x a day as it is to keep my heartrate under control. I am itching this morning as well, and don’t know if that is a side effect of the RAI or not. My throat feels a little scratchy (like I need to clear it or cough) but doesn’t hurt. Thanks for any comments!!

    ncgal
    Participant
    Post count: 4

    I take Metoprolol 2x a day 50mg each. My cardiologist is not thrilled with increasing it any because it lowers my BP so much. It really helps my heartrate though. I worry that my heartrate will get too high, but they won’t be able to increase the Metoprolol because of my BP. When that happened in Aug. they put me on the Methimazole, which combined with the Metoprolol was keeping HR down. Now since I’ve had RAI, I don’t know if Methimazole would be an option. I don’t know if you can do both at the same time. This afternoon my HR has gone down some, so maybe it will just fluctuate a little. Thanks!

    Ski
    Participant
    Post count: 1569

    Some patients do take methimazole after the RAI and before they go hypo, so that’s definitely an option if it’s worked for you in the past. Once you’ve taken the RAI and the first two days have passed, the methimazole won’t prevent the RAI from working any more. If you were taking it at the same time as the RAI (literally, same day), you could compromise the effectiveness of the RAI, but that’s not an issue now.

    ewmb
    Participant
    Post count: 484

    I took methimazole after my RAI. Not immediately but when I was feeling so bad and the change was happening slowly. It helped me get through a rough patch. I’d call and ask especially if you still have part of a prescription at home and it would be easy to go back on it.

    ewmb

    npatterson
    Moderator
    Post count: 398

    There isn’t a dramatic change the moment you take RAI. IT seems to be that It is "knowing" that you have done it. However, it seems to make us all hyper-vigilent, looking for that "ka-boom" when it "hits". It does take usually several months. If your heart rate is climbing, call your doctor. Give him or her numbers to compare and work with. If sitting quietly for fifteen minutes brings it down, that’s good, but possibly not thyroid related. If sitting down quietly for fifteen minutes doesn’t bring it down, it is more likely to be thyroid levels.

    Take care,

    runlacie
    Participant
    Post count: 222

    Hi ncgal! Hope you are feeling better today! How are your symptoms? Could be that your HR is up from the cells dying off and releasing hormones. I noticed a lot of ups and downs for about the first 6 weeks – but as time went by there were less and less "hyper ups" and more and more "normal downs". Also, I had a sore throat on and off for at least a month- not bad, just minor, but it seemed like whenever I had the sore throat I’d notice that I felt more hyper. I had RAI on 7/20 – so almost 2 months now and I am feeling fantastic these days. Don’t hesitate to call and talk to the doctor or nurses about any problems or questions you have. Best wishes and keep us posted, OK?

    ncgal
    Participant
    Post count: 4

    Hi everyone,
    My heartrate is still fluctuating, but it doesn’t seem to last very long when it is up. I think it probably is my thyroid because it does it when I am laying down or sitting doing nothing. I feel better today, I only had a couple of times in the last couple of days that I felt a little nauseated, however, that could have been from my reflux and not have anything to do with the RAI. My throat has felt a bit weird, kind of scratchy feeling, like I need to cough. What is worrying me today has nothing to do with my thyroid…or I can’t imagine how it would….I have a very tender "touchy" area on my right side about 2-3 inches above my pelvic bone, it is kind of hard to describe and tell exactly where it is located, or what "part" of my body is in that spot. I would think that since it has been hurting since last night, that it wouldn’t be appendix because that usually gets worse over time and this has stayed about the same or just gotten slightly worse. I suppose it could be kidney/bladder problems…do you think that radiation leaving your body through your urine could cause something like this to happen? I sometimes wish I had gone to medical school just so I could figure out my own problems <img decoding=” title=”Smile” />

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