[Marpo]

#1067887

Even after surgery, your journey with Graves’ Disease will not be over. I had RAI not the surgery, but I know a few people who had the surgery. Some are doing well some not so well. You will not just wake up from surgery and have your old world back. It will take time and there is still a lot you can learn. I recommend you go to this conference. Being that you want to have a baby, I think it is important that you go and learn more about what to expect after your surgery. I am sure others here will tell you the same thing.

Good luck with your surgery and to a speedy recovery

[Peter]

#1067888

I would be happy to discuss the October National meeting with you (and others). It definitely is helpful for learning more about Graves’ plus you’ll talk directly with world-renowned medical experts; plus many patients. Check out the topics at our home page: http://www.NGDF.org. Registration includes meals.

Give me a call at the National Office – 877.643-3123. You can also send an email to: Gravesdiseasefd@gmail.com.

[heather013079]

#1018928

I’m debating attending the upcoming conference in NC, and could use some insight…

I was diagnosed with Graves Disease in early 2008. I started on PTU and had to stop taking it after 3 months based on liver reaction. I’ve been on Methimazole ever since, with good results. I’m currently on 2.5 mg / day, which is keeping my thyroid levels in check. I did stop taking the medication a few months back, in hopes of remission, but my levels began creeping up fairly quickly. We would like to get pregnant soon, and so I’m scheduled for thyroid surgery in December, with the hopes of getting pregnant soon after. I’m feeling like surgery is my only option, as the medication is not compatable with pregnancy, and I’m not personally comfortable with RAI. I met with a great surgeon at the University of Chicago – he said I have one of the best endos around, and both he and my endo support moving forward with surgery given the situation. So, I’ve done A LOT of research, talked to many doctors, and I think I’m Ok with having surgery… but, it’s so permanent, and that’s where I struggle.

The conference seems like a great opportunity to meet people with Graves Disease, and get additional information… though, I think the best option for me is surgery. With airfare, hotel, conference, and dinners, we’re at approx $2K, and it’s seeming like a lot of money to confirm a decision I think I’ve made.

I would be very interested to hear from those of you who have attended past conferences and/or can offer some insight.

Thanks!!!

[Ski]

#1067889

Conferences (in general) are not my favorite thing, but the Graves’ Disease conference IS my favorite thing, EVER. I will leap tall buildings in a single bound to attend. It has always been the most fun, most informative, most supportive few days of the year ~ and I’ve been to quite a few. If you have ANY doubts, dispel them with a wave of your hand. You will be SO GLAD you came!

[npatterson]

#1067890

Of course I am prejudiced, but the conference IS a great opportunity. Dr. Cord Sturgeon (from Chicago) was our surgeon speaker at one conference. At this conference we have Dr. Klineman to talk about pregnancy.

The dinners are included, but that doesn’t help your budget much!

Don’t come to confirm your decision, but to collaborate about it, and celebrate.

AS Marpo reminded you…having Graves’ is permanent. We all sturggle with the treatment decision.

I vote "yes" (if I have a vote!)

Take care,

[heather013079]

#1067891

Thanks to all for your comments and support. We’re coming! While my husband is not coming to the conference, he’s going to be there for support, and lounge at the pool with our little girl. I’m scheduled for surgery, but agree, this will be a great way to learn more about Graves & pregnancy, and also to meet people with similar experiences. Thanks again to all – I appreciate it!

[npatterson]

#1067892

Great news! I know you will be glad you came.

Take care,

[Author]

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