[ewmb]

#1067320

Have you had a thyroid scan or ultrasound to check for nodules?. I have had no nodules with my Graves but have a friend who does and when his act up he gets the symptoms of hyperthyroidism and then when the nodules are quiet his numbers go more toward normal. Sounds like you are up and down a lot over the past 5 years. Have you had more than one opinion from different endocrinologists? Do you live near a teaching hospital? They might have more patience with trying to find out the answer to your puzzle.

Remember that you need to let any doctor know that YOU want to be treated not your test numbers. I wish you luck with finding out something soon.

ewmb

[enough3]

#1067321

Did they check your T4?

I would encourage you to find a doctor that is understanding. Sounds like you have not found that yet. I would call your Dr. tomorrow and ask for a referrel to an Endo. Hang in there…you will get some answers. Keep doing your foot work and don’t give up.

This is a good place to be to start finding some answers.

[AnnaShtrauh]

#1018821

Hello, I’ve suffered with Graves for about 5 years now, all by myself. I mean, horrific sweating, insomnia, euphoria, tremors, red eyes, scary heart racing, impulsivity, hair loss. You name it– I got it. But I CANNOT get diagnosed with it (even after spikes in blood pressure and having checked my heart in and out my doc is still convinced because results are semi-normal, there’s nothing to worry about). Here are my results:
– TSH, 3rd generation– 0.92
– T4, Free– 1.0
– T3 Uptake– 36 (JUST above the norm)
– T3 Total– 126
– Platelets– 118 (pretty low, but not one doctor cares)
– Glucose, fasting– 104 (High, so now, thanks to Graves, I’m pre-diabetic)
– Alkaline Phosphatase– 31 (Low)
– Cholesterol, Total– 121 (Low)
And I never in my life had these problems….. I also get so nervous, my heart beats so fast that my hands start to go numb and I get chest pains. Last time I was on the plane for 2.5 hours, I almost walked out and said I could not fly because my heart was beating so fast, it couldn’t go any faster. My fear now is dying from this disease. Now I even don’t drink sometimes, because the next day I wake up with my heart pounding and sweating profusely and shaking at the same time. Numerous times I almost called 911, but I don’t wanna alarm anyone, because I know that this only resembles "thyroid storm", but will eventually pass and that’s what I rely on. But I don’t want to keep on gaining weight and eventually die of a heart attack. I want to get healthy, be able to wake up at a normal time and have a 9-5 job. I cannot do any of that and my parent don’t understand me and my symptoms and think I just find excuses. I am so alone with this and it gets very depressing to the point where I gave up looking for answers. This is my last try for an outcry. How can I find the right doctor and how can I get diagnosed (I know that sometimes it’s very hard to catch it, because the hormone level really varies). Any comments or suggestions will be appreciated. You can also write to my e-mail with no hesitation: annashtrauh@yahoo.com.
Sincerely, Anna.

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