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  • Bobbi
    Participant
    Post count: 1324

    Well,I am about eight years out of TED, with my eyes having gone back to almost normal appearance. I still have dry eyes, although perhaps not as bad as it once was –or is it that I’m just used to that aspect of things. I still wear sunglasses when I am outside: the kind the shield both the top of the eyes and the sides. I am not quite as sun sensitive as I once was, but I am much more comfortable with the sunglasses on than not. When I lost my sunglasses while visiting Philadelphia in the winter time, and could not find another pair, nobody in the family felt that this was a big deal, but my eyes hurt from theglare off the snow. So, I suppose what I’m saying is that some of the conditions do persist. My vision, however, is constant, and I do not require the frequent changes of lens.

    There are plugs that can be put into the tear ducts to help with the dry eyes if they are a problem. That has helped many people with the tears issue.

    snelsen
    Participant
    Post count: 1909

    Good morning, I would like to hear the experiences of others who are "done" with TED. All of the following descriptions are very demoralizing to me,
    My eyes feel dry, and I am constantly looking for drops and gel that have no preservative and do not cost so darn much. Does anyone order quantities of either drops or gel online?
    My eyes constantly are brimming with tears, usually running down my face. This interferes with my vision, causing me to constantly dab my face and eyes. In addition to the photophobia which requires wearing sun glasses even on a bright cloudy day in Seattle, I have to shade my eyes when the sun is out. Even if it is not glaring directly in my eyes, but coming from any angle. Of course, this interferes with my vision also. I think I am still in the inflammatory stage of TED. My last question is about wearing glasses. If a person normally wears glasses before this unwelcome TED begins, and our eyes are constantly changing, doesn’t it make sense to have eyes tested for correction in glasses so we can have the best vision possible? Otherwise, it is like wearing someone elses glasses when we have our multiple vision/visual fields tests with our TED eye docs.
    Questions follow.
    Will any of this even end, or even improve? Anyone know of a visor that protects the sides of my eyes from the sun? I can’t run around in one of the big dog collars that they wear when they are not supposed to lick/bit incisions, but I sure feel like a freak shading my eyes.
    Shirley

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