[enough3]

#1018666

I’m starting to have hyper symptoms again. I have been on replacement for 5 weeks and 2 days. I’m taking 100mcg of levoxyl.

I’m planning on getting my labs done this week. Trying my best to hold out till the 6 weeks mark. Anyone here felt like their dose was too high? If you have had it lowered, did you feel better?

All in all, I’m doing great. This hyper is a mild hyper compared to Pre-RAI..just annoying.

[ewmb]

#1066332

I am now on 100 mg of levoxyl after RAI last May. This is my fifth dose change. We went very slowly. I felt a lot better when I first started this dose but the last week or so, almost six weeks on this dose, I too am feeling some hyper symptoms. Mine too aren’t as bad as when I was really sick. I am hoping that some of this is my weird menopause estrogen swings affecting things. I also wonder if my body is saying OH BOY lots of hormone to work with and it’s just not settled yet. I hope to go for a blood draw tomorrow morning. It will be six weeks on this dose then. I don’t expect that I have gone hyper in numbers but you never know. My last tsh was still 25.

Hope you feel better soon.

ewmb

[npatterson]

#1066333

If you haven’t seen your doctor yet, be sure to describe your hyper symtpoms so that a decision came be made. Things like the number of hours sleeping, hand tremors, heartrate, concentration/memory, hot when others are not are good indications that the levels may be too high.

Take care,

NAncy

[enough3]

#1066334

I had my labs done and it turned out that I was hyper. So, I’m now taking 88mcg of Levo. It has been a week now and I feel much better, actually very tired. But, maybe that is normal.

[ewmb]

#1066335

enough3,
Did you start having tremors again and feeling really off? I just went on a new dose a few weeks ago and I am not having tremors in the morning and feeling really off for a couple of hours after I take my levoxyl. I’m not supposed to go back until April 20th for blood work.

Has anyone else turned from being hypo to hyper again so fast on hormone replacement?

ewmb

[ewmb]

#1066336

Finally talked to endo about tremors etc.. Decided to knock it back to 110mcg on three days a week and stay on 112 mcg four days a week without doing blood work. He also told me he’s retiring in a few months. Hope I get settled soon so that I don’t have to start all over with a new endo while I’m in transition.

ewmb

[mamabear]

#1066337

Please make sure you speak to the dr. about his replacement for his retirement and or he recommends you should go to. I would at least have 2-3 office visits with the new endo well in advance of the current one retiring so if you have questions or doubts you can talk to your current one and if need be go with another different endo. If of course your ins. will allow for this, I know my old ins. use to as long as we paid the co pays it didn’t matter who we went to.
Make sure your general dr. also knows the endo will be retiring because if you dont have a new endo by then the general dr. will have to keep up with the thyroid in the meantime.

Get a copy of all of your labs, ask the receptionist for a copy of them for your own records. Don’t let them say oh we’ll send them to another dr.’s office for you. Just get a copy for you to always have so you dont have to worry that you dont have any, if you decide to change dr’s more than once then at least they are in your hands. You can always bring them with you and have the dr’s make copies for themselves or just have them write down what they need. I personally used an excel spreadsheet and gave them it.

good luck, we’re here for ya!

[ewmb]

#1066338

Luckily I’ll be staying in a practice that has at least 10 endocrinologists. They are affiliated with a teaching hospital. I just need to ask him which ones deal with thyroid patients. I will see him one more time in May and my GP was the one who figured out my problem almost three years ago and we had already talked about him taking over when I was stable so I wouldn’t have to drive an hour and a half to get to the specialists. I agree that it’s important to get all labs. I have an excel spread sheet too of my labs over the years. I was able to use it once to point out a trend to my endo when he didn’t see it.

Thanks for the advice always good to share since some people would really be in a different pickle if their endo retired.

ewmb

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