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  • ewmb
    Participant
    Post count: 484

    I’m on my sixth dose change of levoxyl after staring my HYPO in September of 09 after RAI in May 09. Congratulations on your new situation. It means that you can start to get better now. I am hoping that this new does really does make me start to get close to normal. I still have ups and downs but on the whole things are a lot better.

    ewmb

    lizlair
    Participant
    Post count: 10

    Wow, what a difference one month can make. I had my RAI in mid November. After a couple of rough weeks, my system seemed to settle. In fact, my endo prescribed a low level of Methimazole (.5 mg/per day) based upon my blood work and hyper symptoms. (rapid heart rate, swollen ankles, general high-strung)

    Follow-up blood work on January 11, 2010 levels were:
    TSH, 3rd Generation .01
    T4 Free 1.5
    T3 Free 405

    A couple of weeks ago, I started feeling different. Hair seemed to be thinner. Even though we have had a cold winter, I seemed to have less cold tolerence. And, the weight gain started. Based upon friends and my husband’s comments, I knew that I needed to gain a few pounds. But, in the past two weeks, I have added 10 pounds. (I’m 5’9" and went from 118 to 128) On March 5, 2010, I had more bloodwork in anticipation of my endo visit today. What a change!
    TSH, 3rd Generation 95.88
    T4 Free .3
    T3 Free 58

    My Endo called on March 6th and said to immediately discontinue the Methimazole. As I said, I have an appointment this morning to determine the next step. The only good news (and I know that they are not related) is that my TED seemed to improve almost overnight. My eyelids are actually resting slightly over my irises now. No more "deer in the headlights" look. Hopefully, that change will remain.
    I guess the Hypo battle now begins. Any words of wisdom or encouragement are appreciated!

    Bobbi
    Participant
    Post count: 1324

    The "deer in the headlights" look can be a direct result of elevated thyroid hormone levels. Upper lid retraction is caused by the muscles in the lids tightening up. Often, when we regain normal levels of hormone, the lid retraction abates. Lid retraction gives us the appearance of eye protrusion even if there is no actual protrusion going on.

    Good luck with the replacement hormone.

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