[mamabear]

#1065970

I am so sorry that you had to go off the meds due to not being able to handle them.

I am not sure if the rash is due to meds or graves’ but if it is some eczema type irritation talk to the dr. about hydrocorizone and use petrolium jelly every time you wash hands (if on hands) and use a lotion called Curel anti itch defense it helps a lot.

Again not sure if this is your case but moisturizing properly is key when it comes to Graves’ disease related dryness. Talk with the dermalotogist as well but also know that some of them suck you so you keep coming back. Ask very direct questions like;
Is this from my Graves’
Will treating the dryness help?
How do I treat the dryness with over the counter stuff?

Don’t let them throw all of the latest trial size things at you. Let us know and keep in touch… you sound upset and frustrated with not being able to stay on the ATD’s, we’re here even if all you want to do is vent!

[Ski]

#1065971

There is a condition related to Graves’ that is called pretibial myxedema ~ it presents kind of like a thickening of the skin on the shins, it ends up looking a little like an orange rind, and it itches like crazy. It’s another autoimmune condition that some patients get (a really small group), but it can be truly miserable. I’d push for a sooner appointment, if you can get it. If that’s what you’re dealing with, there are steroid creams that can help a lot with the itching, and I would think you’d be better off getting connected to those sooner than later. I think it ebbs and flows like most autoimmune diseases, so there are times when it may crop up, and times that it may go away (IF that’s what you’re dealing with). It’s caused by antibody action (antibodies our body has mistakenly built against its own healthy tissue), so keeping your immune system relatively "quiet" can help the symptoms settle down as well. Stress and stress reactions can "amp up" the immune system, which would usually be protective, but in our case it also stimulates the antibodies that are attacking our tissues. Any way you can keep your stress level down may help. Remember that no one has a life completely without stress, so it’s partly how we deal with it and partly keeping it at bay. Again, IF that’s what you’re dealing with, with this rash.

[candyshell]

#1018604

Hi
I haven’t been here in a while.
I recently been taken off my meds because I can’t seem to handle either anti thyroid meds.
and now I have these new little rash like patches on my shin
I’m going to see a dermatologist next month.
I’m just curious to know ‘
Did the meds cause this or is this just another treat from the grave’s disease fairy?

[19heaven58]

#1065972

I am sorry to hear about the meds. I have been med free for about 3-4 years, so far my thyroid is staying in remission. As far as the rashes, I read before that with graves people can get unexplained rashes. I do get strange rashes especially in the winter. I found this wonderful skin lotion called Cereva ( I think this is how it is spelled) my dermatologist recommended it, you might want to try this. Hope this helps.

[LisaW]

#1065973

My experience with pretibia myxedema is this… I got it 12 years ago. It took a year and 4 biopsies to finally get a correct diagnosis due to the odd presentation of the disease. It has never gone away and any treatment has been a temporary fix. Because this condition is so rare, doctors tend to misdiagnosis or bloy you off insisting it’s so rare that "you couldn’t possibly have this". My suggestion to you would be to research all you can about this condition and go into your doctor’s office informed and prepared and be your own advocate. The only way to diagnosis this condition is by biopsy. I cannot say if early diagnosis would help to stop progression but it certainly can’t hurt.

I wish you the best.

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