[Kimberly]

#1065397

Hi Shirley – Hopefully, someone who has been through the process of adjusting their synthroid dosage will jump in here, but I just wanted to mention that I *have* heard of gastroparesis being connected with hypothyroidism.

Your symptoms are certainly puzzling, with your labs the way they are. Perhaps your body is reacting to the significant cut in replacement hormone over the last 10 months. (Testing for Free T3 might help shed some additional light.) However, it sounds like you have a doc who will keep working with you to help find a solution, so that is good news. If you get some answers from today’s test, definitely keep us posted.

[snelsen]

#1018513

I am looking for experiences, and any comments from facilitators. I am not having problems with the endo, he is great, and I did agree with him to try to reduce my Synthroid dose, because of my many years of suppressed TSH.
I have had a suppressed TSH for at least 15 years, alway .02-.04 range. Our lab normal range is .4-5
Recent lab last week-TSH .027
T4 1.4 (range .6-1.2)
I have NEVER felt/had any symptoms of being hyper. Felt fine. No problems, Not one sign of being hyper.
Now I am reducing the Synthroid based on labs.
In the past 10 months or so, with labs q 2 months, Synthroid reduced incrementally….150,125,112,100, now 75mcg.
AND I FEEL LIKE CRAP,seem to have ALL the symptoms of hypothyroidism. Sluggish, tired, can hardly stay away from the bed,
no weight gain, COLD ALL THE TIME, constipation, and a feeling of distention, or a presence of a lump, under my right ribs;
also not hungry, not comfortable after I eat. Have had to take extra measures of Miralax and benefiber to aid constipation.
(Hey, this is in ADDITION to my TED, but that is not the subject right now)

The endocrinologist has been concerned @ increasing chances of a-fib with a suppressed TSH. I agreed to decrease the Synthroid. But the TSH remains suppressed, and my life has radically changed. I have been screened for all other causes, ie, PET, bone scan. Now EGD two days ago to check out my stomach, it was negative. Now having a gastric emptying study right now (in the middle of it, takes all day.)

i have told the endo I am happy to trade an increased risk of afib for getting my life back. He has said that I have all the symptoms of hypo. He said he will work with me and increase my Synthroid, that he is surprised at how radically I have responded to a reduction of the hormone, with absolutely no change in labs.
QUESTION-Have you heard of a decrease of motility in the UPPER GI tract as well as the lower, related to hypo?
There is a syndrome called gastro paresis, which means the stomach does not empty very well, I am wondering if this, too, (if I have the syndrome, will know later this afternoon.) is ALSO related to my thyroid reduction? The diet for this is blended foods, no fiber, no fresh fruits and vegetables, no fat, minimal meat and fish! I had NO issues at all with eating until about six months ago, and my ability to eat, want to eat, has continued to decrease over the time my synthroid is being reduced. I am noW at 1/2 as much.
DO YOU THINK THIS REDUCTION IS AFFECTING MY WHOLE GI SYSTEM? I know I am repeating, but I am typing fast cause I have to go back to nuclear med for another picture right now. Then I will have two more hours before another trip.
shirley

[snelsen]

#1065398

brief update. going to up to 100mcg for four days, see if i actually feel any different. then we talk some more.
I am sure the gastric emptying studies showed delay. The endo will work with me on all of this. It is so so slow!
Has taken 8 months to reduce synthroid, and how I feel really does not make any sense with my labs. Not a bit.

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