[odapoda]

#1018474

Well, I was diagnosed in September 09, after being sick for about a year. Right before I was diagnosed, I was so ill I barely made it to school. And I had no energy for a social life.
After these ten months of medication, still nothing seems to be okey. I still feel ill, and just a tad amount of stress has me in bed for the next day. And as a nineteen year old, it’s frustrating.

So my question is; is this normal? To not feel better almost at all.
And is it normal to have depressions linked to this? I live in Norway, and I’ve gotten next to nothing when it comes to information – as they know just a little more than me.

Please, help.

[Ski]

#1065103

Short answer ~ this is common, it definitely takes time to come back (especially after having been ill for a year), and it seems to take FOREVER, but you will get to feeling better, I promise, and when it’s in your rearview mirror, it won’t even seem that bad. PROMISE. For now, though, just know that’s the path we all take. "Normal" may only get an inch closer today, but it’s still closer. Try to find the small improvements, and someday you’ll find yourself forgetting to check, because you do feel good.

Check out the other posts on this board, you’ll probably find some that describe what you’re going through. Sometimes it helps just to know you’re not alone, right?

[SeeSallie]

#1065104

odapoda – I so hear your desperation. It was 8 months ago I was still suffering the same way too. Everything seemed to take so long but in hindsight I now know it couldn’t have been treated any faster. We have to wait on those results each time. There is one area though that was an issue for me- so if this is you, look into it: The time to see your Dr. after a lab test.

Lab tests for me were the worst because Dr’s office would schedule me too far from my lab tests. Maybe they were busy…but I don’t care. I should have found another Dr. in that case. Since I didn’t know better and was new, I didn’t fight it at first. Eventually I made a pain of myself and insisted with quicker followups. From then on…I made sure I was seen within 5 days after having blood work done.

The waiting it out between finding numbers is the hardest. I wish to goodness that wasn’t a part of this, but it is. At least we get to know there is some treatment down the road though. Hope that helps. It’s hard going through the icky waiting. I come here when I can’t take it. I’m ok now but I know soon I’m likely to hit hyper again and I dread that moment. But, I’m going in with eyes-wide open at least and with knowledge that in time, we can bring it down again. Not a perfect answer…but we are with you.

[odapoda]

#1065105

Thank you for all the answers, and the encouragement – it really helped ” title=”Smile” />
As much as I try to focus on the smallest of improvements, it’s easy to get frustrated when I’m ill again. As it is for everyone. And you’re right, it does help to know I’m not alone, as I’ve felt alone for so long. With no education for the ones closest to me, they really don’t get it, therefore I have no one to talk to.

Luckily my doctors are fast when it comes to the check-ups, even if I’ve only had two since my diagnosis, and going back for a third one this august. Everything happens a week after the blood is drawn.

Also, I wanted to ask: do anyone here suffer from anemia, specially b12 and b6? I’m on a "eat as much meat you can" and b12 and b6 vitamins, as they are waaay to low. I think I’ve heard that this is common. If so; any supplements other than meat? It’s getting old, not that big a steak fan anymore

[Julie3588]

#1065106

Odapoda – I too was 19 when I was first diagnosed with GD. I went on ATDs, had remission for a year, then relapsed and went the RAI route. I’m now 22 and finishing up college. I definitely understand your frustration with being only 19 and so sick. I too feel like it is a struggle just to keep up with school, much less a social life. Just know that it will get better! It took me 12 months on ATDs, then 3 more months of yoga and eating healthy and generally taking amazing care of myself before I began to feel like my old self again. Now, a year after having RAI, I am once again traveling the same road to recovery.

Your friends may not understand what you are going through. I’ve found that people our age generally aren’t the most understanding regarding serious health issues,and who can blame them, they are at the most active stage of their lives. I also am convinced that going through such crazy hormonal swings due to our thyroid on top of finishing up puberty creates a general recipe for disaster. Sometimes when my levels are off I go back to feeling like a moody 13 year old girl. Also, like you, I no longer have a tolerance for stress. Know you are not alone! Vent all you need, it helps.

-Julie

[Author]

Posts