[Ski]

#1064996

Hi Lydia,

We can’t make specific doctor recommendations here, but people may send you private messages, so keep an eye out for those. There are some suggestions on the best way to find a doctor in the book that Jake & Nancy put together, "Graves’ Disease: In Our Own Words," including ways to have introductory interviews *without* fully signing up with the practice. Finding an endo is so personal ~ it has to do with their expertise in your particular issues as well as their attitude in treatment, AND the way you get along. This is going to be a longterm relationship, so if you go to a doctor and don’t feel good about it, please look for another. I know it’s time consuming, but it’s VERY worth it. If you have a way to drill down to an endo who specializes in thyroid disease, that’s a good place to start. Many endos primarily practice diabetes care, and don’t deal with thyroid patients much, so those are doctors to avoid. Our issues are complex, so it’s extremely helpful to have someone who is experienced.

[Lydia75]

#1064997

Thanks for your response, Ski, much appreciated.

[snelsen]

#1064998

I don’t know how long you have been there, or if you have established care with any doc yet. If you have, I would ask them to explore and talk to colleagues about endos for thyroid disease. Also, ask the docs where you used to live, to do the same thing.
That is a start. You can also call depts. of endocdrinology at the main medical centers, ask the voice at the desk to provide endos who work with thyroid disease.
I think you know you need a different doc for your PCOS. Have you established care with a doc for that yet in nyc?
And, as stated by Ski, you may get a Personal message from someone who knows that area. I am in Seattle, so I am no help, but I will ask my endo here, if I get names, I will send a PM with the names of nyc endo docs who "do" thyroid disease. I do agree with Skl 100% that this is a long term relationship. Having said that, sometimes people on this site make snap decisions about a doc after one visit. I don’t agree with that, for it TAKES TIME and communication from both parties to see how things are going. Best of luck to you. Keep us posted.
Shirley

[Lydia75]

#1018457

Hi-

I’m new to the NYC area (and to this website), and am looking for an endo to treat my Graves (and possibly take on my PCOS, though it’s less of an issue). I’ve been in and out of remission for the past 7 years or so, and I’m hoping for someone who will be sympathetic to the fact that I am not (at this time) willing to treat with radioactive iodine. Does anyone have a NYC doctor that they love?

Thanks!

[Kimberly]

#1064999

Hello – As Ski mentioned, we can’t recommend specific docs on this board, but you can search for doctors in your area on http://www.thyroid.org or http://www.aace.com (American Association of Clinical Endocrinologists). On the AACE site, be sure to specifically request a doctor who specializes in thyroid disorders, as many primiarily treat diabetes patients.

Best of luck!

[carolann3]

#1065000

Kimberly:
I have an amazing NYC female doc who is understanding, patient & open-minded. Email me @ carolsilver@mac.com since i can’t post it on this board. Thrilled to help someone find the relief and peace of mind that she has given me.
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[Kimberly]

#1065001

Great news – thanks for posting! Remember that we have a Private Message (PM) feature here on the boards, which gives you the ability to contact another poster directly without putting your e-mail address in a public forum. Just click on the person’s name, which will be in blue or green at the start of their post…and then click "send private message".

You might want to edit your post to take out your e-mail address…or I can do it from my end if you would prefer. This will help keep those evil spammers at bay!

[snelsen]

#1065002

Kimberly, I tried that website, just to try it, and could not get to names of docs, specialties and/or locations. The site seem s to be limited to MD’s as far as I could determine. Would you give it a try? It seems like such a useful resource for people~ Shirley

[Kimberly]

#1065003

Hi Shirley – Which web site were you having issues with? On the thyroid.org site, highlight "public & patients", and then click "find a specialist". On the AACE site, you can click on "Find an Endocrinologist". I checked both sites for my area, and I do recognize the names as being endos, rather than general practitioners. Let me know if you still can’t get it to work.

[snelsen]

#1065004

DUH! I tried it, worked perfectly for AACE site. I guess I missed the prompts the first time. I did try it for my area, plus my home town in Iowa. I recognized most of the names in Seattle, but interestingly, not any of the names who have been recommended for thyroid dysfunction, including my endo, who is wonderful. Most ofthem did list thyroid dysfunction as one of their specialties, though. I recognized some of them as primarily docs who do almost all diabetes in their practice.
I think it is a good tool, though, when you are new in an area. Better, at least, to be learning more about endocrinologists and their practice specialties by asking others, or asking the office.
Thanks, Kimberly.
Shirley

[Lydia75]

#1065005

Hi All-

Thanks for the feedback, I’m new to the city, and am just trying to start with a slightly shorter list than every single endo in the phonebook. I’ve avoided working with my last doctor, because I really wasn’t happy with her, but do need to find someone soon, as I’m having trouble controlling my symptoms and don’t currently have ANY doctor (travelling three states away to see my old docs just isn’t an option).

I definitely understand the need to interview different doctors to see if they’re a good match (I’ve had a few wonderful doctors and a few TERRIBLE doctors in the past, and don’t have a problem moving on if it’s not a good fit), but I do need someone who is willing to look at my history and help me work out some treatment in the meantime. I don’t have any sick/vacation time accrued at my new job, so I don’t have the luxury of visiting a lot of doctors (realistically, I think I could come in late or take a long lunch maybe once a month), so I’m basically looking for SOME way of narrowing the field besides pulling names out of a hat, and figured that patient satisfaction is as good an indicator as any ” title=”Wink” />

[Kimberly]

#1065006

@ Shirley – Glad that you got the site to work!

@ Lydia75 – The nice thing about the thyroid.org site is that all the docs are thyroid specialists. And with the AACE site, you can narrow the results down to just those docs who specialize in thyroid dysfunction. Agree that starting with a list of all the endos in the city is an exercise in frustration, as many endos primarily see diabetes patients. Best of luck!

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