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Wow! I have not been here in a very long time. But I got to thinking today about this website, remembering the time I hung on to it like a lifeline because no one understood how heinous this disease made me feel. Way back then one of the moderators commented that it only *seemed* like no one got better because once a person got better, they stopped posting. And that must be true. I know I did!
I just want to drop a line and let you all know, there is light at the end of the tunnel. It’s not a lie. There is life after this diagnosis. Six years ago, I would have doubted that. Don’t get me wrong, it took a good bit of time, as we all know this disease seemed to be about waiting and "see what happens". I went undiagnosed for at least two years, lost all muscle mass, lost my hair, almost lost my nails, lost my will, my mind and my ability to dwell in light. I did PTU, heart meds and two RAI’s. Then came the joyous experience of getting the replacement hormone at the right dose (something that changes now and again). I was one sick puppy. Just getting out of bed was difficult, getting off the toilet even worse. Don’t laugh, I’m serious, that’s how weak I was.
I have the gift of rarely having to think about it anymore. If something feels off, I have my hormone levels checked and adjusted if needed. I do a little cardio every now and again to keep things loose and flowing. I remember that I am not superwoman and no one has the right to expect me to be. I can honestly say that today I sat and thought back on those very sick years and shivered. That is so not my life now. And it does not define me. And when I want to freak someone out I tell them I have no thyroid.
Be kind to yourself. This will not define you.
Carys
Just what I needed to hear this weekend. Almost a year on levoxyl and still searching for the Gold dose. I know it will get better…… If only this sinus infection would go away…….
on antibiotics should take care of it in a few days. ewmb
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