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I’ve had the same feelings since I had RAI. They are slowly getting more and more uncommon now that I am a year from RAI and hopefully close to my "real" dose of levoxyl. It’s a long long process to get to feeling better. Whenever I am sick, like this week with a sinus infection, or stressed I feel like I could be Hyper woman again. I am very sensitive still to my heart rate and feel like I can tell you my BP without a reading ” title=”Very Happy” /> It will get better. It takes a lot of time for your body to adjust to new territory. I used to live in Seattle and know that you can find great care there from docs so just keep telling her what’s going on and things will eventually turn in your favor.
Hope you feel better soon.
ewmb
Hello all – I first want to say that this is my first time posting, but I have been on the boards and reading for several weeks, and everyone is so positive and helpful. This is a great resource.
My story begins this way – in April in 2010 I stopped sleeping and when I could get to sleep, had to sleep with a fan on the drown out my heartbeat that was hammering in my throat, my tummy, everywhere, also the anxiety and jitteriness made me want to crawl out of my skin. After several nights of this, I went to my GP and he ran some tests and he found hYpErthyroid. He put me on metorpolol to get the heartbeat under control, a little Ativan for the anxiety, and refered me to an endo, who diagnosed GD. I had RAI in early May, June’s numbers were still hYpEr (TSH = 0.07, T4 = 1.10), and by early July I was hYpO (TSH= 86.80, T4 =.29). My endo started me on .112 mcgs of levo and for the first two weeks on it I felt terrible. Lashing out at everyone, irratable, tired. Worse than I had felt before starting levo. Believe it or not, even with numbers that out of whack, I hadn’t felt too terribly bad. Then I began to feel better, actually what I would term normal for about 2 weeks – Normal – it was great!! Then the next two weeks I felt like I had maybe drifted into the hYpEr territory again – mildly jittery and anxious. It was time to check the blood again, and to my surprise, I was still hYpO (TSH 15.26 – no T4 checked for some reason) The endo upped my dose to .136mcg. The jitters continued and got slowly worse. I went back to my doc and she tried to wean me off of the metropolol which resulted in a night with some of the worst jitters, anxiety, insomnia I have ever had. I called her again the next day and she did another blood draw and made the decision to leave me on the metropolol. RIght now my numbers are (TSH =7.98, T4=1.42). Crazy – the most normal set of numbers came while I was feeling sooo not right. Thing is, I still feel quite jittery, buzzy. I cannot see the tremors on my hands, but I just feel like I have just had too much coffee (and i don’t drink caffine) In light of my symptoms the doc pulled me from Levo completely until I see her again on friday. I don’t understand how I can have hYpEr symptoms while I am hYpO. Has anyone else had this? Could it be the levo? I haven’t had a dose for 4 days and I still feel jittery and buzzy. I am weary of feeling not myself and weary of dealing with the day to day ups and downs of this disease. I am a 33 year old mom to a 4 year old, and due to hubby’s crazy work schedule, we are on our own a lot. Sometimes it is more than I can handle to take care of her, the house, and this disease too. I just want to feel normal. Sorry this is so long winded, but I wanted to get the story down. Thank you all for being here.GD is a complex condition and has multiple symptom levels, even though you have had RAI, though this has eliminated or reduced the Hormone levels issue, there are still underlying factors of GD active, as time goes on your body will heal and the symptoms will gradually subside. The other thing with GD is the way it magnifies things so any sudden changes will be multiplied, this includes diet, stress, medication etc. so slow steady changes, you will still be sensitive for a while yet. With your replacement dose I have heard that it needs at least 1 week to start taking effect after you adjust it, there have been people who have got locked into the roller coaster ups & downs because they were trying to adjust too often.
The rule I have heard is 4 weeks between adjustments.
Try to apply some stress management and relaxation techniques as well, these can help dramatically to the way you feel.
You will get there.Thank you for both of your responses. I am still feeling jittery – but have been put on some anti-anxiety meds that seem to be helping a great deal. Today was one of the first days in a long time I have felt virtually jitter free. I know that this is a slow process, and just trying to take it one day at a time. Saw my endo today and she put me back on 136mcg of Levo, with a check back and blood draw in a month. She said that GD is so uniquely personal – people can have lots of different symptoms, and some that can be confusing. I have been taking yoga 1-2 times a week and always feel better after. Thanks for listening – it is very helpful to know that others are out there going through the same thing.
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