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Hello, All I might have posted wrong, so i’ll just start my topic. 2 months ago i was dignosed with Hyper graves disease. went from 195 to 167 in 1 month. They did all the work, scan, ultra, determined that it was graves. I take 40 mg of propranolol 1 time a day and methimazole 10 mg 2x a day. While scanning they found something on my thyroid, nodule.??and they did the biospi. waiting for results. I feel much better beside the joint legs pains. Little buldge in the eye, it went away. tremors, gone. heart papitating. gone. I think i going into hypo. now. I go back for my new blood test to find out how these med are doing. I was going to cut the methimazole in half, because it turning me into hypo. could that be. I hope my nodule is not cancer. I don’t want RAI, and i don’t want surgery. I been reading this book by a lady who cured and still does cure herself. She use color of food, and colors of rooms. She basically said that it is stress from life, and love lost. I try to keep the stress out of my life now. and be happy, and have fun.
Welcome to this wonderful site.
In my view, this is the best and most reliable resource on the web for discussing Graves with others who have had it, and for accurate information from the facilitators.
I imagine that in your reading, you have also learned that Graves’ is a medical situation where the thyroid gland begins to circulate too much thyroxin, and that puts your whole body in "fast-drive," represented by the symptoms you have been experiencing. Graves’ is definitely not a healthy way to lose weight, that is for sure. DO NOT decide to change the dose of methiamazole yourself. You are being treated properly, by going back for labs, and based on the labs and how you are feeling, the endocrinologist needs to make that call. Same with the propanolol.
At this stage of Graves’, you need to be monitered frequently with the labs. Graves’ is a medical condition that CAN be serious and even life threatening, if not treated with drugs to get you out of the hyperthyroid state, managed carefully by the docs and with ADT’s and a drug to slow down your heart rate.
At some point down the road, you will have the three options that you are aware of, RAI, surgery or continuing with ADT’s.
But we can’t fix this disease without the help I have mentioned above.
I am sure you will hear from the facilitators, but managing Graves’ by yourself is not an option. It is not safe for you.
You have a good goal of decreasing stress in your life when you can. THere are a lot of steps you need to take to empower yourself about Graves’ and the treatments available to you. I am sorry, but the book by the lady who cured herself with colors, is not a very good resource for getting on the road to health after a diagnosis of Graves.
All of us on this site have had Graves’, I think you will learn a lot by reading some of the other posts. You WIll feel good again!
I know you will be hearing from others in the near future.
Shirley
(Graves’ for 50 years, controlled with thyroid replacement after surgery (which I chose to have.)Ok. My test said i don’t have cancer. thank GOD. Now i have to deal with the graves or the hyper or the hypo. I will stay on the dosage, I just don’t want to get bigger. I heard so much about going the opposite way. Lot of weight gain from RAI, or have them removed then go on steroid then go into Hypo. then you take a pill for the rest of your life. Why?
Hello – Anything that we can do to make ourselves healthier overall, such as eating a clean diet and reducing stress, can certainly help with the healing process. However, as Shirley mentioned, it is very important to get the hypERthyroidism under control, as leaving it untreated can cause bone/muscle wasting, heart issues, and a potentially fatal condition called thyroid storm. You will read books or see testimonials on the Internet about people who say they “cured” their Graves with some natural regimen. However, in some cases the disease actually goes into remission on its own…so there is no *proof* that the approach they used was responsible for addressing their Graves’ Disease or their hypERthyroidism. So we have to chose ONE of the conventional treatment options…all of which have different pros and cons.
With Anti-Thyroid Drugs, you have to watch for potential liver and white blood cell issues, which are rare, but serious side effects of these meds. When the meds are discontinued, there is always the potential that our hypERthyroidism could return.
With either surgery or RAI, you will be on thyroid hormone replacement for life — and it does take some trial and error to find the right doseage that will stabilize your thyroid hormone levels and make you feel good. This can be a difficult process for some patients. As with any surgery, thyroidectomy comes with a risk of complications. The most common complications with this type of surgery are damage to the nerves around the vocal cords and parathyroid glands. The RAI treatment is not recommended for women who are pregnant or who hope to become pregnant within 6 months. Also, there is some question as to whether RAI can exacerbate eye symptoms. (This is actually a topic for discussion at our upcoming conference this month in San Diego, so I am interested to hear what the doctors have to say).
That’s a huge relief that you are not dealing with thyroid cancer. Now you can focus on getting your hypERthyroidism under control and starting back on the road to good health.
hugs and kisses. thank you. i will learn
I have known personally many Graves’ patients who have had either the RAI or the surgery. Both did very well. None of them gained weight when put on the thyroid hormone. They did have to watch their weight by watching their food intake. After surgery or RAI they could not eat the same amount– all they wanted—as when they were first diagnosed with Graves’ disease. Some individuals do well on the antithyroid drugs—even go into remission (being normal for at least a year after stopping the medicine) and do not have to go on to RAI or surgery — and do not have to be put on thyroid hormone. (Your endocrinologist will let you know when you should reduce or get off your medication). You should definitely go to your endocrinologist, tell him your symptoms and ask to be tested so he can tell you what your present dosage should be. The goal should be for now to get your thyroid hormone levels normal and you might be one of the more fortunate ones that achieves that goal (even staying normal when taken off the drugs) on just the antithyroid medicines. The only way to find out is to try it and see how it works.
It is great to hear the good news about your nodule. If you have more questions about nodules (you may not need to ask with your positive results) email me your phone number (Gravesdiseasefd@gmail.com) and I will be give you a call.
You just have to take the one step at time (it’s not easy and we all wished it could be done much faster) and you will get there I am sure!
Ellen Brightly
Administrative Assistant
Graves’ Disease Foundation
400 International Drive
Williamsville NY 14221
Toll-free — (877) 643-3123
Email: Gravesdiseasefd@gmail.com
Website: http://www.NGDF.orgHello, While i got back on track. I miss 1/2 day of 10 mg methimazole intentionally, i told you about that in the early board. and the next day, i forgot to bring them with me. I started feeling the effect yesteday. I started getting andzy, a little hyper. I read all the concerns on the board and i will contiunue you to take my meds. I never took vitamin before, but now, i take:
calcium, fish oil, mega vitamin, D3, Vit E, Stool softner, and one more, can’t think of it right now and i exercise, and try very hard to not be around stress, because i don’t want my eyes to budge out, they look normal again. A lot of praying. Thank you – I trust my doctor with my life, But you see i have always been hyped. I feel more hyped now. I saw the tremors in my figer tips, i felt my heart beating crazy. Is this my life, now. dealing with this.Hello, it’s me. I spend so much time on here, that i think i getting to much information. I think i got bone wasting. I’m taking the Calcium herbs, and D3 and multi, fish oil, and ……now i read i need B12. WOW. I sitting here and my waist aches, some days my legs, or my hips when i first get out of bed WOW
Make sure you tell your doctor about every supplement and vitamin you are taking ~ they have the potential to interact with your medication (or each other), and some can accumulate to toxic levels if taken in high doses. Just make sure you’re as safe as you can be with everything you’re using.
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