[marta1234]

#1018262

I am back having bad days after amazing week. And like many people here , I wonder when it ends. I have been more then 3 months on MMI , after 2 months anxiety stopped , a bit of nervousness was still present from time to time . Finally last week I had a great week with just a bit of palpitation and early morning waking up- always 5 am !!
Yesterday and today my nervousness , anxiety is back . Why ?? Nothing happened in my life, that could trigger my anxiety , it just came all of the sudden and I can not control it.
Last week I felt like I finally “own my body”, I felt like I can do meditate, smile , spend time with friends and family and my nervousness is gone. Today my courage is all gone, I am scared again , I don’t have confidence to do simple things.
How much longer it will last??

[Antony]

#1063583

Marta,
Although my my own life still has external situations beyond my control (or perhaps because of it), I try to come up with ways to lessen my symptoms where I can. One big anxiety trigger for me is the fear of getting lost when driving; my wife bought me a gps last year and it’s helped a lot.
I love crosswords, but found that my mind continues to work on the puzzle long after I walk away from it, so I don’t do them in the evenings (I still struggle with insomnia).
This disease can be overwhelming at times and I feel like I constantly make excuses for how I feel or behave, so every little thing I can do to manage my life helps.
If it sounds like I have my act together, I don’t, lol. But being here just now is probably where I needed to be ” title=”Wink” />
Tony

[optimist]

#1063584

It’s not going to help anything by beating yourself up. Your symptoms coming back is not a punishment for anything you did or didn’t do. Graves can have a mind of it’s own, regardless of what we do or don’t do. Of course modifications help, but it’s not the end all be all. Those good days will come back again. You never know, it could be as simple as needing an increase in dosage. When is your next appointment?

[marta1234]

#1063585

Thank you so much !! I have appointment next week ( it will be 6 weeks after lowering the dose) and I can not wait to see where I am now. Last time after 10 mg of MMI I was at the bottom of normal lab ranges, , so dose was reduced to 5 mg.
I don’t expect to see that I am going hyper again , I think my results will be in the middle, which makes me worry already.
After last lab results I didn’t understand why I was almost hypo and I still had hyper symptoms ( nervousness , anxiety , early morning waking up ) and 4 weeks after I had my first great week .Now anxiety is back. I didn’t expect that GD will be such a difficult disease.
I am looking forward great days again . At the beginning I was hoping that after few weeks it will be all over, now It takes months. 3 difficult months already!

[Bobbi]

#1063586

Marta — thyroid hormone is used throughout the body. If it is out-of-whack, EVERYTHING is out of whack. And, simply getting to normal levels is not enough to make us "feel" normal. It takes time AT normal levels — months of time — for the body to heal and for us to regain strength. So, try not to fret about the fact that you still aren’t normal yet. The medication dose is not stable, so your body isn’t yet in a place where healing stands much of a chance. It’s a slow process, but we do get well again.

Wishing you more good days,

[marta1234]

#1063587

I can’t get over what my endo said when my lab test felt into normal ranges in august that all my symptoms are not Graves related because blood results are fine. After first month of taking MMI he reduced my dose from 30 to 10 mg and told me to come back in 3 months. Sorry for complaining and venting about endo here but doctors can make us very unsecured about the disease.
Even my first full week without constant nervousness didn’t comfort me and “ old worries “ quickly came back again .
Thanks to forums and friends I am still fighting, but when I have some bad days I really need that reassurance that I will have great days again.

[Kimberly]

#1063588

Hello – Keep in mind that if you feel a major shift in your symptoms (hypER *or* hypO), you can always call the doctor’s office and get labs run sooner than scheduled.

I notice on occasion that I can get hypER-like symptoms from certain foods, such as eating a huge Chinese dinner or overloading on sugar. These usually go away within a day.

If your symptoms persist, it might be worth checking to see if your doseage needs to be adjusted at this time.

You *will* have great days again…it’s just that our recovery process doesn’t necessarily follow a linear pattern of steady improvement. Sometimes the routine is two steps forward, one step back. Hang in there!

[Author]

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