[Mullein]

#1018206

Hello, I am Mullein
Since I am reading fairly personal experiences of folks on this board, I feel I have to tell a little bit about me and Graves as well and not just be lurking.

I got diagnosed three weeks ago – after at least 5 months of symptoms that I could tell, now that I am finding out more about it. I had a colonoscopy (yes, makes me smile now too) from increased metabolism with of course "no problem found", but when increasing heartbeat, hot flushes and trembling hands could not be explained away by pre-menopausal symptoms, I got referred to my endocrinologist.

I am currently on medication, and for the first time in so long am actually smiling about the good things in life again, am joking often about "what else is in that medication?". Still working on medication adjustment, first testing of values next week. I am okay with the medication for now, as it allows me to make an informed decision about what to do in the long run.

So thank you for letting me read your stories, and hope to participate as well, after things become more orderly with this new found companion that is part of me now.

Mullein

[snelsen]

#1063255

Hi Mullein, welcome to this marvelous, reassuring and factual site. It really is so helpful to "know" others who actually understand this darn Graves’ disease.
I am so happy for you that your doc referred you to an endocrinologist. Even happier that you are on meds now, and experiencing some improvement in the crazy symptoms of hyperthyroidism.
I wish everyone on this site would read your post, for your comment about being on an ATD (anti thyroid drug) and its’ relationship to making informed decisions, is extremely helpful to anyone with Graves’. When we are hyper, we are HYPER, and it certainly is more challenging to thoughtfully absorb information, make decisions, in this state.

There is a lot to learn, and there are decisions in the future that you will be making as you march through Graves’. It really is almost magical to feel the changes back to being your normal self as the ATD’s kick in. It sounds like you have a good endocrinologist, who is informed about Graves’, another big plus.
Do write again, tell everyone how things are going for you.
Shirley

[Kimberly]

#1063256

Hi Mullein – Thanks for stopping by to introduce yourself! Unfortunately, misdiagnosis seems to be fairly common with Graves’ Disease, but I’m glad you finally got a referral to the right doc and are feeling good again. We hear stories from so many patients whose docs dismiss their symptoms as stress or depression or anxiety…although you are probably the first colonoscopy story that I’ve heard. But hopefully, you got good results and can take a pass for the next 10 years! ” title=”Wink” />

Please check back and let us know how you are doing!

[Ski]

#1063257

Thanks so much for your story, Mullein, I am glad it’s going well and that we’ve helped you learn and also keep things in perspective. Let us know how things are going, and I hope you’re feeling truly well, soon!

[Author]

Posts