[craftylady]

#1018088

Can anyone speak to having to adjust your levox dose downward after RAI? I have had to have one downward dose adjustment because it was putting me right on the verge of hyper, and I feel like I need to have it adjusted again. I have been jittery and irratible. I hope to get into the endo this week. I have gone from 137mcg to 125 mcg. Also, has anyone needed to have RAI twice who would be willing to talk about it? I had RAI in May of last year, went really hypo in July (TSH was around 85). I only had 8 milicures. I have a very small thyroid and my uptake was really high (cannot remember the specific %). I am terrified of having to do it again. I feel like my numbers wouldn’t have dropped quite so significantly if it didn’t "take", but at the same time I didn’t expect to be monkeying around with my dose almost a year after the fact. The last time they lowered my dose, I felt great for about 8 weeks, then those old hyper feelings started again. I am frusterated and tired. Each time I think I see the end of the tunnel, it gets yanked away from me. Also, thank you for all of your posts and comments. I don’t comment much at all, but I have been reading this forum since the beginning and it is very helpful, and comforting to know that I am not alone.

[Bobbi]

#1062628

Hi, craftylady. You are a long, long, long way from having to worry about a second RAI. My experience of over 12 years with replacement hormone is that it needs to be adjusted from time to time. Last year, for instance, I had to have mine raised. There have been times, though, when I had to have mine lowered. And then a year or so later, raised again. There can be various reasons, most of which have nothing to do with having too many thyroid cells. 125mmgs is still a significant dose of replacement hormone. Sometimes, our diets have changed a bit. Sometimes, we are taking more/less water with the dose. Sometimes, other medications/supplements have been added/subtracted. Sometimes our other hormones change (menopause, for instance, or birth control) and that throws things off a bit. While it would be nice if we could settle into one, standard dose that we never ever have to change again, the reality is that sometimes changes are necessary. But they are a lot easier to manage than rampaging antibody issues.

I hope you are feeling better soon.

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