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  • Bobbi
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    Post count: 1324

    With hyperthyroidism, it is a huge mistake to tweak your meds on your own. If you do, your doctor may not be able to figure out what dose you need to be on (if any), with any reliability. And, tweaking things on your own, when your doctor finds out about it, could undermine your working relationship with the doctor over the long term. And we are in this for the long term.

    When you have questions like you now have, the best thing to do is call the doctor’s office and tell the nurse, and ask what you should do. Especially about the rash.

    As for the weight question, gaining weight might be due to your levels of thyroid; it might also be due to your workouts. Building up muscle adds to weight. But our doctors are singularly uninterested in our weight issues typically, so don’t expect a whole lot of response just based on weight alone. There are way too many factors that enter in on our weight ups and downs for them to automatically assume it’s your thyroid levels.

    Michabelle
    Participant
    Post count: 5

    I have been taking Tapazole since Sept for my Graves’ and have been responding well to it. I started at 15 mg per day and am now on 2.5 mg per day, but have noticed a change in my symptoms in the past couple of weeks. I have been gaining weight despite working out 4-5 times per week and feel very tired most of the time. I also have been getting some itchy, bumpy rashes in small areas on my body that I didn’t have before. Could this mean that it is time to get off the meds as I might be in remission? I have an appt with my Endo next week, but can’t wait much longer. I am considering switching my dose to 2.5 mg every other day and see if that levels things out. My Endo had said that i was responding quickly, but she was trying to keep me on the meds for at least a year to make sure. I just feel like I’m taking extra drugs that my body doesn’t need right now and it is having the opposite effect of Graves on me and I’m starting to feel hypo.

    Anyone else have a similar experience when they went into remission?

    Ski
    Participant
    Post count: 1569

    Just a quick comment on your question about remission ~ remission is defined as a period of more than one year when your thyroid hormone levels remain normal in the absence of any medication or thyroid hormone replacement, so you couldn’t possibly be in remission right now. Even if your levels were normal right now, you’d have to maintain that for at least a year first.

    mamabear
    Participant
    Post count: 484

    I AM in remission, I am not taking medicine at all and have maintained good levels for 4 years now. THAT IS remission.

    You are experiencing something but it is not remission. This might be a reaction to the drug but ONLY your dr. can determine that. Not us and not you. Changing your dose might make you start at ground zero around and you don’t want to do that. What you are experiencing is not your body saying hey i’m good stop the treatment, it’s saying call your dr. you have some questions.

    You do not have to wait to see the dr. in order to get answers. Call them and tell them what is going on, they might say come in sooner or we’ll squeeze you in monday.

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