[mizkity1]

#1017911

So within 4 weeks I have been on 3 different doses of Synthroid. I started out on 150 MCG’s did my normal 6 month blood work 3 months early cause I felt crappy and could tell it needed to be adjusted, those results had the doc move me to 125 MCG. We waited 3 weeks and re-tested my TSH and that prompted him to move it to 175 MCG. I’m all out of wack, and unfortunately this is pretty normal for me. It’s Hypo, it’s Hyper, it’s Hypo, Hyper…. you get the drift. But never so close to flop meds this frequently.

I quit seeing my Endo about 5 years ago, and actually only saw her a handful of times. My family practice doc (whom I love) handles all of my testing and med changes – which is all that the Endo was doing – but now I want to get this thing out of me and apparently HAVE to have an Endo write the order for the surgery ” title=”Sad” />

I don’t know where to go, I will NOT go back to the Endo I was seeing. She was horribly mean. She ordered Radioactive Iodine Therapy to kill the thyroid; but it didn’t kill it, it did shrink it though. I wanted to discuss weight loss options with her and she said we would address that once the thyroid was under control. So after 8 months of my levels checking out and being on the same dose, I brought up weight loss again and I kid you not; when I asked her what would be the best option for losing some of the thyroid weight she very pointedly said "Don’t eat as much". Coming from someone who had seen me go from 225 (which is a good weight for my build at 6 ft and I was never a ‘small’ person) to 315 was disheartening to say the least. I mean this wasn’t just a Joe off the street this is a Doctor that is supposed to have my health and well being at the top of their list – at least when I’m in the room! I later learned that a friend of mine also went to the same doc and had a similar experience. Both of us were referred to her because she is considered the ‘Best’ in the area.

So now I am on the hunt! I remember seeing somewhere on the forum that specific Dr. names cannot be posted however they can be privately messaged so if you know of someone in the Hampton Roads area of Virgina I would really appreciate you sending me a message!

I have checked http://www.thyroid.org and the closest they have is 50 miles out in Williamsburg, I also checked http://www.aace.com and they were able to provide one result. But before I just blindly pick out of the phone book I prefer to hear from someone that’s had a personal experience so I don’t end up with the same outcome as I did before.

Thanks for reading my post ~ and thanks in advance for any advice! ~Angie

[Ski]

#1061600

I completely understand ~ there’s no reason for a doctor to treat anyone that way, it would be very disappointing! I’ve had a couple of similar circumstances, and it’s something that’s just such a betrayal, from those who are supposed to be the experts in the field and the most equipped to help, or guide us.

I hope you get some specific advice on a new doctor from someone in your area, but if you don’t, you may want to make a phone call to one of the offices that are among your options, and talk with the head nurse in the practice, or even someone at the front desk, to get a general idea of how they "perceive" the doctor they work for. It can be rather illuminating, and can give you at least a little bit of comfort (or perhaps help you scratch the name off your list).

As far as your thyroid levels, YIKES! If your thyroid is still functioning at some level, you are going to be very, VERY tough to manage, so I completely understand your desire to just get to "zero" and go from there. In the meantime, I think you may benefit from some "calming" therapies, just because the less anxiety you feel, the less the antibodies will be stimulated, and you may be able to keep some spikes from happening. It’s no guarantee, but it’s certainly the right direction, as you navigate through to your next step. There’s nothing specific to recommend, just pick something that works for you to soothe your soul and give you peace. It could be yoga, it could be reiki, it could be massage, or it might even be watching a funny movie and having a long, hot bath. Just keeping yourself in a less anxious state *might* help.

I wish you luck!! Once your levels are normal, and stable, you should seek out a physical therapist. That’s the best place to start in evaluating your overall strength and developing a good exercise plan that won’t cause any harm as you re-develop the muscles that were damaged during hyperthyroidism.

[Bobbi]

#1061601

One other observation: according to my endo, getting blood tests too frequently leads to a hormonal roller coaster. She didn’t use those precise words, but that was the gist of things. If you test too soon, the TSH (in particular) has no chance to normalize to the new dose. You can therefore "think" that your dose hasn’t worked, and raise it, only to find a few weeks later that you are, indeed, hyperthyroid again. Obviously, if you’ve waited six months, the blood test info should be solid. But three weeks is much too short a time to know how things are going (again, according to my endo). Through over thirteen years of observation on this board, I have noticed that the folks who complain about never being able to get their levels right are testing their blood much sooner than my endo recommends ( wait six weeks minimum, three months optimal until you get consistent results then stretch it out). In fact, the one time my endo did not wait to change my dose (because she uses other types of observations for things like hypo/hyper, in addition to the blood tests) I did, briefly, do a roller coaster. From then on, I became a believer, and even though I might have felt lousy, I would wait the prescribed amount of time before going in to check the blood again.

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